A year of great gains and personal loss. Membership exceeded 4,000 and the new Campaign office was formally opened in Wells. M.E. Action joined forces with the ME Association (MEA), the International Federation of M.E. Associations (IFMEA) and Westcare, an independent Bristol-based M.E. charity, to campaign for a fair representation of M.E. in the new Disability Living Allowance (DLA) handbook.
Following intensive pressure from the MEA, M.E. Action and Westcare, the Department of Health finally agreed to set up a National Task Force on CFS/PVFS/M.E., to “provide an impetus for positive action.” Richard Sykes, Director of Westcare, played an important role in bringing together the Task Force.
Tragically, after a number of personal set-backs, former Director Martin Lev took his own life. Editor Martin Arber’s tribute described the Campaign’s first Director as “one of the most dynamic people I’d ever met... He continues to inspire us.”
1992 ended on a happier note when rock music legend Rick Wakeman (pictured right) performed a benefit concert in aid of M.E. Action.
