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2011

The Medical Research Council (MRC) announced £1.5m funding "for research into the causes of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/M.E.)" with a June deadline for submitting proposals.

In February, The Lancet published the initial results of the PACE trial.

NICE decided not to review its guideline on CFS/M.E. until August 2013.

Our Scottish election manifesto for M.E. received support from many potential MSPs, 13 of whom were elected. Cross Party Group on M.E. Convenor Andy Kerr lost his seat but the Group reformed under Labour MSP Mary Fee.

On 26 March, the Disability Benefits Consortium and the UK Disabled People’s Council organised a Hardest Hit march and rally in London. Action for M.E. joined other people with M.E. (see photo, right) to campaign against Government spending cuts.

Mandatory work experience for some on Jobseeker’s Allowance was introduced.

Representatives from Action for M.E. met senior representatives from the Department for Work and Pensions.

In May we launched our NHS services survey.

The National M.E./CFS Observatory published its fourth and fifth paper, A Disease Register for ME/CFS: Report of a Pilot Study, and The functional status and well being of people with M.E./CFS and their carers.

Clare Francis stood down as a Trustee after many years service but continues to be our President.

In June, the Government had to change its NHS reform proposals for England following widespread concern about its Health and Social Care Bill.

In July we launched this, our new website!

In August the UK's first biobank for M.E. was launched, co-funded by Action for M.E., the ME Assocation, ME Research UK and an anonymous donor.

Our AGM and Open Conference 2011 was held in October in London.

 

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