Action for M.E. works in partnership with organisations that aim to improve the lives of people with M.E. and other long-term conditions for the better and/or work towards overcoming M.E. in the longer term.
The nature of this work varies. Here are some examples.
Research
We work with the Medical Research Council (MRC), researchers, clinicians and other charities as members of the MRC’s Expert Group on CFS/M.E.
We are co-funding pilot research for an M.E. biobank project in association with the ME Association, which will draw on a patient register set up by the National M.E. Observatory.
We are also funding the National Outcomes Database which collates the findings of NHS specialist services in England. The data gathered could lay the foundations for future genetic research.
Healthcare
We support the British Association of CFS/ME healthcare professionals (BACME) and facilitated the production of NHS Scotland’s Good Practice Statement on M.E.-CFS for GPs and patients.
In Scotland we are also part of a Managed Clinical Network (MCN) looking at how NHS Lothian can develop and improve its services for people with M.E.
Consultations
In addition to regular consultations with people affected by M.E., we also combined forces with the Association of Young People with M.E. (AYME) and The Princess Royal Trust for Carers to produce our election manifesto for M.E. – and with the Disability Alliance and Disability Benefits Consortium in challenging the government on welfare benefits’ issues.
Parliamentary
We provide the Secretariat for the All Party Group on M.E. in Westminster with the ME Association and are among the charities who attend the Countess of Mar’s Forward ME group.
We also provide the Secretariat for the Cross Party Group on M.E. in Edinburgh.
Publications
InterAction benefits from a regular column by ME Research UK. Our booklets, such as All about M.E. and Pacing for people with M.E., are checked by colleagues in the NHS, as is Your child with M.E., produced in association with AYME.
Our Supporting Members are entitled to paper copies of factsheets produced by the independent agency, Benefits and Work, of which we are members.
New partnerships
Action for M.E. has recently become a member of the Neurological Alliance and we are looking for ways to work together.We are always keen to hear from other organisations that wish to work with us to improve the lives of people with M.E.
We also value the contributions made by our sponsors and potential corporate partners.
