6 October 2011
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated.
Baroness Campbell: your views on DLA
Baroness Campbell asks people to comment on her proposal to challenge the nomenclature of the Personal Independence Payment. “I think it should remain Disability Living Allowance,” she says. “After all that’s what it’s about, disabled people’s extra cost of living. If the government want to continue encouraging us take responsibility over our lives, then they must give us the right to make our own decisions as to how DLA money should be spent. It must not be measured by able-bodied people’s assumptions as to what it is to be independent.
Same Difference, online
Service with a smile?
For poor and vulnerable people, shoddy customer service is the norm, says Clare Allan. “Money brings choice, and with it the option to take one's custom elsewhere,” she comments. “But council tenants have no choice but to deal with the council or council contractors, however they are treated. Benefit claimants can hardly threaten to take their claims elsewhere. Depressingly, this seems to result in the very worst standards of service.”
Fundraising art exhibition
Hannah Clifton, 47, was a lawyer when she became bedbound for more than a decade with M.E. A stay at Burrswood, a private hospital in Kent, helped her recover. Now Hannah has set up her own charity, M.E. Trust, to raise awareness of the illness, and is hosting a fundraising exhibition of paintings by Arthur Lowe at Windsor Castle.
Slough & South Bucks Express, p 26
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