8 December 2012
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated.
Sir Peter welcomes NUJ statement
In a letter to the editor, Sir Peter Spencer, Action for M.E. welcomes the statement issued by the National Union of Journalists’ Disabled Members Council which urges journalists to “support and sustain fair and balanced reporting of matters relating to disabled people.” This follows publication of a select committee report earlier in the year that said coverage of welfare benefits claimants is “often irresponsible and inaccurate.”
Longridge & Ribble Valley News, p 7
I took part in Norwegian rituximab trial
Diagnosed with M.E. in 2001, Elene Naeverlid from Bergen, Norway says her “life was put on hold.” In May 2008, Elena took part in a pilot study that used cancer drug rituximab to treat people with M.E. After experiencing an initial easing of her symptoms, Elena suffered a series of relapses over the next two years as scientists tracked the progress of the drug. “Then, in February this year, they nailed it and I finally got my life back,” she says. Now Elena is looking forward to Christmas for the first time in years.
Chat, p 61
Proper biomedical research is needed
In a letter to the editor, Catherine Ashenfelter, Grace Charity for M.E., points out that the time is way overdue for M.E. and Fibromyalgia to receive proper biomedical research funded by the Medical Research Council.
Private Eye, p 15-16
“Life with M.E. can be a lonely place”
Susan Wheeler, who has had M.E. for ten years, says that taking part in a newspaper photoshoot has given her a boost. “Life with M.E. can be a lonely place,” she says. “I’m still living for the day when I wake up and feel absolutely fine again.”
The Scottish Sun, p 48-49
Talk about living with M.E.
Alan Nuttall, Thirsk Rotary Club, recently gave a talk to members of the Helmsley and District Rotary Club about living with M.E. Alan’s daughter has the illness.
Malton & Pickering Mercury, p 29
Keeping an M.E. diary
In a letter to the editor, Dr John Greensmith, M.E. Community Trust, invites readers with M.E. to “keep a diary in a uniform way, to attempt to better understand the cause, onset, progression and possible outcomes, using the benefit of a much bigger population for statistical analysis and mutual support. Safety and confidentiality is ensured by each diarist assuming an alias and saving data to their own computer.” They are invited to send an email from their assumed name to firstname.lastname@example.org with 'My M.E. diary 2012 trial' in the subject line.
Western Mail, online
Investing in health services
Venture investors in the US are optimistic about investing in the health service sector, says Joanna Glasner. Examples of business in which they have invested include Chronicity, a Texas-based provider of clinical services for people with chronic conditions, including CFS.
VCJ (Venture Capital Journal), p 10-13
The coroner has recorded a verdict of suicide after popular teacher Anne Davis, 55, was found dead in her home in September. Miss Davies had a history of depression. She had also been diagnosed with CFS.
Sutton Guardian, online
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