12 September 2011
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated.
‘Systematic failure’ to protect disabled
A new report, Hidden in plain sight, published by the Equality and Human Rights Commission (EHRC), says that authorities are guilty of a "systemic failure" to protect the hundreds of thousands of disabled people who routinely endure harassment or abuse. It concludes that a fundamental shift in society's attitudes towards disability and disabled people is needed. "There needs to be a collective responsibility so everyone notices and no one turns a blind eye," according to the EHRC’s Mike Smith.
Dedicated Rebekah cares for mum and sister
Rachel Darling says her sister, Rebekah Wheeler, is a huge inspiration to her. Rebekah is a full-time carer for Rachel and their mum, who are both bedbound most days with M.E. Rebekah also finds time to take Rachel’s daughter Meaghan horseriding. “While most people her age are getting married and starting a family, my sister is dedicating her life to care for us,” says Rachel. “She’s a wonderful person who is truly appreciated.”
Horse & Rider, p 9
New online Scottish Hub for M.E.
A new online resources, www.actionforme.org.uk/scotland, has been launched for people with M.E. and their carers living in Scotland. The Scottish Hub for M.E., launched by charity Action for M.E., offers information, a searchable services database and a forum for peer-support.
Holyrood, p 53
AGM for Worcestershire M.E. Support Group
Worcestershire M.E. Support Group will hold its Annual General Meeting, Tuesday 27 September at City Centre Community Centre, Midland Road, Worcester, 2-4pm.
Worcester News, p 6
Retiring after developing M.E.
Brass band conductor Colin Mason, 72, set up Burnley Alliance Junior Silver Band in 1992 but has decided to retire after developing M.E. Colin, who has only miss practice eight times in nearly 20 years, says, “I am now suffering from chronic ill health and it is getting more and more difficult for me to commit to the rehearsals. I am looking for someone who is enthusiastic, committed and understanding, and someone who has experience with children.”
Burnley & Pendle Citizen, p 10
Open letter to journalists
In a letter to the editor, Dr John Greensmith, M.E. Community Trust, says he is currently drafting an open letter to journalists who have covered the recent story about M.E. researchers receiving death threats, asking them to revisit the story and ask some crucial unanswered questions.
Longridge & Ribble Valley News, p 7
Wibbly Wobbly Wendy painted as she recovered
Watercolour artist Wendy Brown moved to Barton-on-Sea in 1999, leaving a stressful job in London as a National Trust chef. Three years later she was diagnosed with M.E., and was housebound for 12 months. She began to paint as she recovered, and quickly developed a trademark quirky style that sees her known locally as Wibbly Wobbly Wendy.
Hampshire Society Magazine, p 34-35
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