19 December 2011
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated.
Delays in diagnosis "wholly unacceptable"
Sir Peter Spencer, Chief Executive, Action for M.E., says it’s "wholly unacceptable” that in children and young people are experiencing delays of up to a year and a half when getting a diagnosis of M.E./CFS."No other illness has such a devastating impact on so many people but has so little money spent on scientific research or the provision of specialist healthcare," Sir Peter added.
Private Health, online
1 in 100 pupils misses school due to M.E.
A study published in the online journal BMJ Open has found that one in 100 secondary school pupils could be missing classes because of CFS/M.E. Dr Esther Crawley, University of Bristol, said, “This project suggests that undiagnosed
CFS/M.E. may be an important and under-appreciated cause of school absence in children aged 11-16 years.”
Berwickshire News, online
This article also appears online in the Bexhill Observer, Bourne Local, Buckingham Today, Bucks Herald, Carluke Gazette, Carrickfergus Times, Chorley Guardian, Clitheroe Advertiser, Dinnington & Maltby Guardian, Diss Express, Driffield Today, Female First, Garstang Courier, Harborough Mail, Hastings Observer, Hawick News, Hemel Today, Horncastle News, Kincardineshire Observer, Leigh Reporter, Longridge News, Mansfield and Ashfield Chad, Mearns Leader, Milngavie Herald, Mirfield Reporter, Morley Observer, Morpeth Herald, News Letter, Northampton Chron, Pendle Today, Retford Today, Ripley and Heanor News, Selby Times, Selkirkweekend Advertiser, Sheffield Telegraph, Skegness Standard, Sleaford Standard, Southern Reporter and Wigan Today.
Sir Peter welcomes NUJ statement
In a letter to the editor, Sir Peter Spencer, Action for M.E. welcomes the statement issued by the National Union of Journalists’ Disabled Members Council which urges journalists to “support and sustain fair and balanced reporting of matters relating to disabled people.” This follows publication of a select committee report earlier in the year that said coverage of welfare benefits claimants is “often irresponsible and inaccurate.”
Crewe Chronicle, p 16
University of Bedfordshire welcomes Alan Cook
Alan Cook CBE, Chairman, Action for M.E., will succeed Andrew Bentley as Chairman of the University of Bedfordshire’s Board of Governors.
Luton & Dunstable Express, p 9
WPI vows to continue M.E. research
Annette Whittemore, president and founder of the Whittemore Peterson Institute (WPI) for Neuro-Immune Disease in Reno, Nevada, says that the arrest and charging of her former research director Dr Judy Mikovtis will not prevent the WPI’s research into M.E./CFS. “There is more federal funding for this disease than ever, and they’re deeply committed,” she says.
Reno Gazette Journal, online
New Bristol study into treatment of CFS
Frenchay Hospital and Bristol University will lead a study to look at whether referring people for treatment in the early stages of CFS could lessen its impact. The £250,000 study, funded by the Research for Patient Benefit programme, will start in the spring and involve doctors referring patients to Frenchay Hospital’s specialist M.E. clinic as soon as they show symptoms if there is no other explanation for them. Dr Hazel O’Dowd, who runs the Frenchay service, said that currently many patients are not referred to the clinic until they have suffered symptoms for five years.
This is Bristol, online
Valerie raises more then £6,000 for M.E.
In a letter to the editor, Valerie Moody, who is bedbound with M.E., thanks everyone who has bought copies of her book, Someone like me. Valerie has raised more than £6,000, which she has donated to research funds with the Irish M.E./CFS Association and Invest in ME.
Strabane Weekly News, p 6
Keeping an M.E. diary
In a letter to the editor, Dr John Greensmith, M.E. Community Trust, invites readers with M.E. to “keep a diary in a uniform way, to attempt to better understand the cause, onset, progression and possible outcomes, using the benefit of a much bigger population for statistical analysis and mutual support. Safety and confidentiality is ensured by each diarist assuming an alias and saving data to their own computer.” They are invited to email from their assumed with 'My M.E. diary 2012 trial' in the subject line.
Luton On Sunday, p 12
Michael Winner recommends pills for M.E.
In his book Tales I never told!, Michael Winner recalls how he helped people with M.E. recover by recommending the list of pills that worked for his girlfriend. Barbara Windsor says the pills helped her, too.
Sunday Times, News Review, p 12 and online
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