27 June 2011
A summary of recent M.E. related stories in the news. Headlines appearing in the media as dated.
Getting the story straight on XMRV
Carl Zimmer writes about the process of correcting mistakes in science, using the current disagreement over XMRV as an example. He also reports on the large-scale XMRV study of 300 subjects, being undertaken by virologists Judy Mikovits and Ian Lipkin, with results expected by the end of the year.
The New York Times, online
M.E. or postural tachycardia syndrome?
Postural tachycardia syndrome (PoTS) is a condition that makes it very difficult to go from sitting to standing without fainting or feel dizzy. A study conducted by Newcastle University found that up to 40% of people with suspected M.E./CFS may actually have PoTS.
The Daily Telegraph, p 30
Hospital delaying potential research
Charity Invest in M.E. and PCTs in Norfolk and Suffolk hope to bring
a top London M.E. consultant to Norwich, so that people with M.E. can get a diagnosis, then be referred to researchers at the University of East Anglia for study into the illness. But Norfolk and Norwich University Hospital, where the consultant would be based, is unwilling to be involved, arguing that it does not have clinical expertise in M.E.
Eastern Daily Press, p 16
CFS standoff must end, says BMJ
An editorial describes BMJ's impressions of the Invest in ME conference and says nothing will improve while campaigners believe only drug treatments based on biological cause will help and doctors believe patients who won’t try GET or CBT are untreatable.
British Medical Journal, p 7 and online
New vice-chair for APPG on M.E.
Ian Swales, Liberal Democrat MP for Redcar, has been elected vice-chairman of the All Party Parliamentary Group for M.E.
Teeside Gazette, p 18
My MP should attend APPG
In a letter to the editor, Keith Bradbury says that, despite written assurance from Aidan Burley, Conservative MP for Cannock Chase, that he would seek further information from the All Party Parliamentary Group (APPG) for M.E. about the illness, Mr Burley has not yet attended a single meeting of the APPG.
Burntwood Post, p 8
Ice cream business takes off
Paul Clarke battled CFS for five years; at one point it was so bad he considered taking his own life. He still has days when he is bed bound, or must use a wheelchair, but has recovered sufficiently to establish a successful business, Yorkshire Wolds Diary Ice Cream.
Bridlington Free Press, p 12
MP opens Clywd M.E. Group conference
Mark Tami, Labour MP for Alyn and Deeside, opened a recent Clywd M.E. Group conference, where talks were given by Sue Waddle of M.E. Reasearch UK and occupational therapist Lynne Williams.
The Chester Leader, p 20
Raising awareness of M.E.
Megan Crombie, 17, has had M.E. for two years. She entered the Miss Durham competition to raise awareness of the illness, and hopes to become a sports teacher.
Washington Star, p 5
Support in Mansfield
Mansfield M.E. and FMS Support Group meets on the first and third Wednesday of the month and St John’s School, St John’s Street from 10.30am to 12.30pm.
Mansfield Chad, p 32
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