20 January 2014
Action for M.E. is setting up a Patient Reference Group to be involved in its health and/or research work, and would like to invite you to apply to join.
The group is open to M.E./CFS patients, carers and their family members only, and will be facilitated by Action for M.E. CEO Sonya Chowdhury.
From discussion and consultation with Supporting Members and others, the following have been suggested as a possible focus for the group:
“No terms of reference have been set yet, because I feel very strongly that this should be done by us as a group, through discussion and negotiation,” says Sonya. “The group will meet virtually - by email, phone or teleconference – and we particularly welcome input from anyone affected by severe M.E. We will explore the most appropriate way of meeting to suit individual needs.”
If you are interested in joining the group, please:
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