M.E. affects approximately 12,000 adults and children in Wales.
In 2007 the National Institute for Health and Clinical Excellence (NICE) issued a full guideline and quick reference guide for health professionals in England and Wales, on the diagnosis and management of CFS/M.E. in adults and children.
The Minister for Health and Social Services at the Welsh Government set up a ‘CFS/ME Task and Finish Group’ in 2009 to develop and improve existing services and agree an all-Wales model care pathway. Its 2010 report, endorsed the NHS Map of Medicine care pathway for CFS/M.E., and recommended adapting it for use in Wales. An amended version was finalised in March 2011 and made available for NHS Wales staff.
Limited NHS fatigue management services are located at Bronllys Pain and Fatigue Management Centre (Brecon), BCUHB West CFS Service for Adults (Conwy) and Connah’s Quay Clinic, (North Wales).
The Connah’s Quay Clinic describes its service as: “a group-based programme for people with an existing diagnosis of Chronic Fatigue Syndrome. We also provide individual multidisciplinary assessment and treatment for people with Medically Unexplained Symptoms that include significant levels of fatigue.”
WAMES, the Welsh Association of ME & CFS Support, has been campaigning for better services since 2001.
Can you recommend a local service?
If you can recommend any health, welfare, social care or other support services for people with M.E. in your local area, please tell us and we will try to include it in our online directory.