Campaigning on social care

Recognising the priorities identified by people with M.E. in our 2010 election manifesto, Action for M.E. is calling for all adults, young people, and children with M.E. to receive optimal respite care, support and information.

We want to see:

• Social care staff ensure there is a designated key worker to co-ordinate the care of the most severely affected adults, children and young people. They will ensure that families are aware of the physical aids they are entitled to, to make daily living safe and manageable.
• All people with M.E. provided with a “disability survival kit” in order to help with benefits applications forms and accessing other kinds of support such as ‘Blue badges,’ aids and adaptations. This will be made available both in paper format, and online, and must be reviewed regularly to ensure it is kept up to date.