While national guidelines, policy and practice are far from perfect, there has been considerable progress over the past 10 years.
In the UK, work by Action for M.E. and many other organisations and individuals has played a vital role.
Two major national reports published in England and Scotland
Key developments at home and abroad
- Gibson Inquiry Group on Scientific Research into M.E. published its report, calling on the UK to lead the way in encouraging biomedical research.
- National Institute for Health and Clinical Excellence (NICE) published its first guidance on CFS/M.E. for the NHS, saying: "The healthcare professional should acknowledge the reality and impact of the condition and the symptoms" and that the physical symptoms "can be as disabling as multiple sclerosis, systemic lupus erythematosus, rheumatoid arthritis, congestive heart failure and other chronic conditions."
- Scottish Public Health Network published its draft Needs Assessment of Health Services for ME-CFS. The final report was published in 2010, following public consultation.