Skip navigation |
Raise awareness of severe M.E.

Newly diagnosed?

Find out more about M.E.

Need information or support with M.E.?

Call us 0117 927 9551

Apologies to those experiencing slow response times on this website. We are working to resolve this.

Our vision is a world without M.E.

Action for M.E. is an organisation led by people with M.E., for people with M.E. Read about our ambitious plans for 2014-16.

M.E. (Myalgic Encephalomyelitis) affects an estimated 250,000 men, women and children in the UK. Symptoms can include post-exertional malaise (a period of intense exhaustion that lasts for more than 24 hours following exertion) and chronic pain. M.E. affects different people in different ways and symptoms can fluctuate and change over time.

M.E. is defined by the World Health Organisation as a neurological condition. It may be diagnosed as Chronic Fatigue Syndrome (CFS) or Post Viral Fatigue Syndrome (PVFS).This should not be confused with chronic fatigue, which is a different illness.

There are a range of views about M.E. Find out more about the illness and our position.

Action for M.E.’s mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure.

Latest

RSS: Latest
 
dps
NHS Bill to be discussed later today
Daily press summary
21 November 2014
 
Fundraiser of the week - Oscar Hardwick
Fundraiser of the week - Oscar Hardwick
Our news
21 November 2014
 
Foward M.E. minutes - October 2014
Foward M.E. minutes - October 2014
Policy & campaigns
20 November 2014
 
Severe M.E. Symposium: next steps
Severe M.E. Symposium: next steps
Our news
20 November 2014
 
Benefit cuts are driving food poverty
Benefit cuts are driving food poverty
Daily press summary
20 November 2014
 
Dr Montoya seeks cause of CFS
Dr Montoya seeks cause of CFS
Daily press summary
19 November 2014
 
Giffgaff customers, we need your vote
Giffgaff customers, we need your vote
Our news
18 November 2014
 
Devon NHS M.E. service under review
Devon NHS M.E. service under review
Daily press summary
18 November 2014
 
 

Help us continue vital work

Action for M.E. offers support and information to people affected by M.E. while campaigning hard for better public services and more biomedical research into the illness.

To enable is to do this vital work we rely totally on gifts and donations. Apart from a small grant in Scotland, we receive no Government funding.

Action for M.E. is the UK’s leading charity for people affected by M.E., but remains a small team that thinks and achieves big. We have a full time equivalent staff of 11.

If you have found this website useful, or have used any of our other services, there are many ways that you can give a gift to make sure we can continue our work, help others and achieve the ambitious plans we have set ourselves in our Statement of Strategic Intent between now and 2016.

Any gift, however large or small, is gratefully received. You can donate a one off gift or set up a regular donation. We also have a range of easy giving options.

If you’d like to get more involved, there are many ways you can help us raise vital funds including low energy M.E. friendly ideas and many ways to enjoy with family and friends.

We have places in prestigious running events and our Dressing Gown Days offer a novel twist on fundraising dressing down (or up) days in your school.

Download our Fundraising pack or visit our fundraising pages for more information and ideas. Emily and Georgina, our fundraising team, are always happy to offer extra help and advice. Email or call them on 0117 9279551.

Welfare Advice and Support Service

Welfare rights helplineOur Welfare Advice and Support Service offers information and advice by telephone and email on welfare benefits (including Employment Support Allowance, Personal Independence Payments and Disability Living Allowance), disability discrimination, employment and insurance issues. We also publish a range of welfare benefit factsheets.

By phone: 0845 122 8648 (Costs just over 2p per minute from a BT landline. Mobile and other landline charges will vary.)

Mon 10am to 12.30pm and 2pm to 4pm
Tue 10am to 12.30pm and 2pm to 4pm
Wed 2pm to 4pm
Thu 10am to 12.30pm and 2pm to 4pm
Fri and bank holidays closed

By email: our new online enquiries facility should only be used for brief, specific welfare benefits questions which can be dealt with quickly. For detailed enquiries, please use the telephone advice line.

fundraising standards board

Regional information

Back to top

 

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we'll assume that you are happy to receive all cookies on the Action for M.E. website. To find out more about the cookies, see our privacy policy.