There is no doubt that children, young people and adults who have M.E. and their carers need social care but anecdotal evidence suggests that only a lucky few receive it.
Action for M.E. acknowledges the financial and operational constraints which practitioners and local authorities face in providing care and we lobby government to increase resources.
However, it is also possible that people who have M.E. do not realise that they may be entitled to social care.
Or that care assessors or allied professionals and practitioners do not have access to adequate information about the illness.
People with M.E. do not necessarily look ill and the severity of symptoms can vary, from person to person and on a day by day, week by week, month by month, year by year - or hour by hour basis.
You can help by:
If you work with children, please read the child protection guidance produced by Action for M.E. in association with Association of Young People with ME.