Children and young people with M.E.
We know that living with M.E. can be hard, especially when you're young. M.E. can make it difficult to spend time with friends or family and can have a big impact on your life, including school and hobbies. You might have to stop doing some of the things you enjoy for a while, or do them less often so your body can rest. It can be hard for other people to understand what you’re going through and that can leave you feeling as if no-one gets what it’s like to have M.E.
Being a member of our Young People's Community, open to anyone with M.E. aged up to and including 18, is a great way for you to talk to other people your age who have M.E. Some are more severely affected than others, but even if their experiences are different to yours, every member of our community understands what it’s like to live with M.E.
We also offer information, support and advocacy for young people, their parents/carers and professionals, no matter what the issue. We have supported lots of families with accessing healthcare, education and social services, and challenging unhelpful attitudes about M.E. We understand the challenges that come with living with M.E., and we will do what we can to help and support you. You, or your parent or carer - or anyone in your family - can call our Crisis, Advocacy and Support Service on 0117 927 9551 or send us an email.
For parents and carers, we offer a dedicated online forum where you can get advice and support from other parents and carers of young people who have M.E. This is open to any parents, carers and/or guardians of children and young people with M.E.
Join our community
For access to some great services, please join our Young Person's Community - it's free, and open to anyone with M.E. aged up to and including 18.
We are setting up an online form so you can join quickly and easily, and this will be ready very soon. You can join right now by emailing us or calling 0117 927 9551.
Once your registration to join is approved you'll be sent a welcome email, telling you about our services (see the list below) and sharing a link to our lively Young Person's Forum. Your forum profile will be checked by the forum administrator. If there are any problems they'll email you to chat about it but otherwise your account will be approved and you'll be able to log in to the forum.
You can use the forum to talk to other young people affected by M.E. about anything and everything, from living with the illness to your hobbies and interests. Our friendly forum moderators all have experience of M.E. themselves and will ensure you have a safe and fulfilling experience. Some people use the forum to get support and talk about how M.E. effects them, while others use it to talk about things other than M.E., such as hobbies and interests, with people who understand what it’s like to have M.E. The forum is kept safe a dedicated group of volunteer Peer Support Moderators (PSMs) who’ll chat, provide support and signpost you to resources they think might help you.
What other services do we offer?
- Cheers is our online magazine written especially for and by young people with M.E. Write and submit your own articles about topics that matter to you, or just read what others have written!
- We offer a fully customisable penpal service that puts you in touch with another young person affected by M.E. Just choose the kind of person you’d like to speak to and we’ll make it happen. Any letters the two of you send will come to us and we’ll forward them on so that your address and personal details stay safe.
- Some of our more severely affected community members are too ill to write back. If you’re OK with writing a letter to someone and not getting a reply back, then you could make a huge difference to someone who’s very isolated and too unwell to see their friends. If you’re severely affected, you can apply to receive a letter from a buddy writer.
- All our community members receive a hand-written birthday card from one of our volunteers unless they choose not to.
- All severely affected young people receive a handwritten Christmas card from one of our volunteers unless they choose not to.