Imagine having months off from work because you are so ill, so pole-axed by fatigue and pain, that you are no longer able to tell the time when you look at the face of a clock. Imagine you can no longer read even the shortest paragraph because your power of concentration is reduced to zero.
That is the experience of many thousands of people with the chronic neurological condition myalgic encephalomyelitis (M.E.), sometimes diagnosed as chronic fatigue syndrome (CFS, or M.E./CFS), which affects around 250,000 people in the UK, and 35 million worldwide.
Action for M.E. takes action to end the ignorance, injustice and neglect faced by people with M.E. We do this by meeting need now to improve the lives of people with M.E. while taking action to secure change for the future. Read more about this in our 2016-2021 strategy.
You can read about the difference our work makes to people living with M.E. in our annual report and accounts 2017-2018.
Alongside providing information, support and advice to people to help improve their health and well-being, Action for M.E. works with professionals to enhance the care and support that people with M.E. receive and funds pilot research projects to advance knowledge of the illness.
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Our small, dedicated team – we employ 18 part-time and full-time staff – is supported by around 70 volunteers, working with us in our Keynsham and Scotland offices and at home to deliver our vital services. The majority of our Trustees have had M.E. themselves, and most of the remainder have experienced it as carers.
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