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About us

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Introduction

Introduction

Imagine having months off from work because you are so ill, so pole-axed by fatigue and pain, that you are no longer able to tell the time when you look at the face of a clock. Imagine you can no longer read even the shortest paragraph because your power of concentration is reduced to zero.

That is a daily experience of many thousands of people with the chronic neurological condition myalgic encephalomyelitis (M.E.), sometimes diagnosed as chronic fatigue syndrome (CFS, or M.E./CFS), which affects at least 250,000 people in the UK, and 35 million worldwide.

Action for M.E. takes action to end the ignorance, injustice and neglect faced by people with M.E. We do this by meeting need now to improve the lives of people with M.E. while taking action to secure change for the future. Read more about this in our 2016-2021 strategy.

You can read about the difference our work makes to people living with M.E. in our annual report and accounts 2017-2018.

Alongside providing targeted information, support and advice to children, young people and adults with M.E., we offer peer-support services that reduce the isolation that so often comes with M.E. We work closely with professionals and policy-makers to improve access to appropriate care and support services, and collaborate with scientists, patients and clinicians to move biomedical research forward, including funding PhD studentships.

Our small, dedicated team – we employ 18 part-time and full-time staff – is supported by around 70 volunteers, working with us in our Keynsham and Scotland offices and at home to deliver our vital services. The majority of our Trustees have had M.E. themselves, and most of the remainder have experienced it as carers.