If your child has been diagnosed with M.E. you may be feeling upset, worried, stressed, or even angry. Although there is no miracle cure for M.E. the outlook for young people with the illness is good and most children will get better. In the meantime, it is important to understand the impact the illness can have on your child and other family members, including you.
This section provides information and guidance for you and your family. It can also be enormously helpful to connect with our parents who have a child with M.E., and our Parent Members Forum is the place to do that.
Your GP should be your first and best contact in terms of managing your child’s M.E. on a regular basis. Depending on where you live, your GP may refer your child to a specialist, some of which may provide care specifically for children with M.E. You can find your nearest by searching our services directory.
If your child is still at school or university, their M.E. could have an impact on their education. You can find guidance on contacting their school or college in our Education section, so that they can access the right support.
We have also produced a booklet, Your child and M.E., which features further information and guidance on caring for a child that has M.E.
In June 2017, our survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness found that 1 in 5 parents said they had had a safeguarding/child protection referral made against them because of their child's illness.
If you're a parent of someone with M.E. and are in a similar situation, our Children's Services Team can provide you with advice and support - just call our Information and Support Officers on 0117 927 9551.
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