These booklets, factsheets, toolkits and reports are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of producing and revising our publications, it would make a big difference.
What is M.E.? / Living with M.E. / Make a difference / Children and young people / Research
Find out all about our services for children with M.E.
Reporting on Action for M.E.'s promises to improve the lives of people with M.E., inspire action at all levels, and invest in change, our Board of Trustee's annual report looks at the difference we made for people with M.E. from 1 April 2016 to 30 March 2017, and reviews how we raised and spent funds.
What is M.E.? / Living with M.E. / Make a difference / Children and young people / Research
The results of our 2017 survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness, which show that one in five families have been subject to child protection referrals as a result.
The functional ability scale is an important tool to help you work out where you are with your M.E. You can use it to help you describe and measure how much you can do. If you are someone whose symptoms vary a lot, you may want to make a note of where you are on a good day, as well as where you are on a bad day.
Living with M.E. / Health & care professionals / Employers & teachers / Children and young people
This Action for M.E. factsheet for children and young people with M.E., their parents, teachers, and other professionals supporting them, gives information on exam accessibility, special considerations, Standard Attainment Tests, GCSEs and A-levels.
This Action for M.E. factsheet is for parents of children and young people with M.E., teachers, and other professionals supporting the family. It sets out the role of social workers in relation to families with M.E., and what to do if they raise child protection or safeguarding concerns.
Employers & teachers / Health & care professionals / Children and young people
This Action for M.E. factsheet for children and young people with M.E., their parents, teachers, and other professionals supporting them, offers information on Individual Healthcare Plans and Education, Health and Care Plans.
Children with medical needs may receive education provision in a range of settings. They may attend school with some support. If they cannot attend school they may be educated in a medical alternative provision setting, or in a hospital school. Or they may intermittently attend school and receive education in a medical alternative provision setting, at hospital or at home. This document is designed to help schools identify the steps they should take to ensure children with medical needs receive the support that they need.
© 2019 Action for M.E. Charity registered
in England and Wales: 1036419.
Registered in Scotland: SC040452.
Get in touch
Our office is open Monday to Friday 9am to 5pm. Please call our Information and Support Officers on 0117 927 9551 or send an email. You can also contact each team by direct dial.
Our Social Networks
Newsletter Signup
Site Designed and Developed by Bake and Headadvisory.