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These booklets, factsheets, toolkits and reports are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of producing and revising our publications, it would make a big difference.

My mummy has M.E.

Having M.E. is challenging, especially when you are a parent. If you are struggling to explain your condition to your children, we have created this children's booklet to help. This children's story uses the words of one of our junior members and follows Jack whose mum has M.E.

Living with M.E. / What is M.E.? / Children and young people with M.E./CFS


My sister has M.E.

When your child gets sick it can be difficult for everyone in the family - especially young siblings who don't understand what is happening to their brother or sister. This children's booklet follows the story of Sophie whose big sister has M.E.

Children and young people with M.E./CFS / Living with M.E. / What is M.E.?


I have M.E.

It can be difficult for children with M.E. to understand what is happening to their body and why they feel the way that they do. This children's booklet follows the story of 7 year old Chloe who has M.E. Here she shares her experiences with symptoms, resting and day-to-day life with M.E.

What is M.E.? / Living with M.E. / Children and young people with M.E./CFS


Action for M.E. Trustee report and accounts 2017-2018

What is M.E.? / Living with M.E. / Make a difference / Children and young people with M.E./CFS / Research


Children's services leaflet

Find out all about our services for children with M.E.

Children and young people with M.E./CFS


Action for M.E. Trustee report and accounts 2016-2017

Reporting on Action for M.E.'s promises to improve the lives of people with M.E., inspire action at all levels, and invest in change, our Board of Trustee's annual report looks at the difference we made for people with M.E. from 1 April 2016 to 30 March 2017, and reviews how we raised and spent funds.

What is M.E.? / Living with M.E. / Make a difference / Children and young people with M.E./CFS / Research


Families facing false accusations: our survey

The results of our 2017 survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness, which show that one in five families have been subject to child protection referrals as a result.

Children and young people with M.E./CFS


Functional ability scale

The functional ability scale is an important tool to help you work out where you are with your M.E. You can use it to help you describe and measure how much you can do. If you are someone whose symptoms vary a lot, you may want to make a note of where you are on a good day, as well as where you are on a bad day.

Living with M.E. / Health & care professionals / Employers & teachers / Children and young people with M.E./CFS


Exams for pupils with M.E.

This Action for M.E. factsheet for children and young people with M.E., their parents, teachers, and other professionals supporting them, gives information on exam accessibility, special considerations, Standard Attainment Tests, GCSEs and A-levels.

Employers & teachers / Children and young people with M.E./CFS


The role of a social worker

This Action for M.E. factsheet is for parents of children and young people with M.E., teachers, and other professionals supporting the family. It sets out the role of social workers in relation to families with M.E., and what to do if they raise child protection or safeguarding concerns.

Employers & teachers / Health & care professionals / Children and young people with M.E./CFS


Support plans for pupils with M.E.

This Action for M.E. factsheet for children and young people with M.E., their parents, teachers, and other professionals supporting them, offers information on Individual Healthcare Plans and Education, Health and Care Plans.

Employers & teachers / Children and young people with M.E./CFS


Supporting children with medical needs

Children with medical needs may receive education provision in a range of settings. They may attend school with some support. If they cannot attend school they may be educated in a medical alternative provision setting, or in a hospital school. Or they may intermittently attend school and receive education in a medical alternative provision setting, at hospital or at home. This document is designed to help schools identify the steps they should take to ensure children with medical needs receive the support that they need.

Children and young people with M.E./CFS