In England and Wales, a government organisation called the National Institute of Health and Care Excellence (NICE) publishes evidence-based guidelines for doctors about how to manage many illnesses and health conditions, including the NICE guideline for M.E. Please note that these guidelines are currently under review and will be updated by 2021.
In Scotland, the government has produced a guideline for doctors called the Scottish Good Practice Statement on M.E. There are no official guidelines for M.E. in Northern Ireland.
The guidelines say that doctors should consider diagnosing M.E. if a young person has had fatigue for 3 months, and after three months should be referred to a paediatrician. However, if they severe symptoms they should be referred immediately to a specialist service.
Guidelines also make it very clear that:
Because managing severe M.E. is complicated, the guidelines make it clear that specialist expertise is needed immediately to plan for this. For example, they may need access to use community services. The guideline also sets a realistic picture of what activities and long-term goals should be like for someone with severe M.E. (such as "sitting up in bed or brushing hair" as a long-term goal).
Donate now and change a life