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These factsheets are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of research and updating it would make a big difference.

All about M.E.: symptoms and management

Myalgic Encephalomyelitis (M.E.) is a chronic fluctuating illness. It is commonly also known as Chronic Fatigue Syndrome (CFS or CFS/M.E.). Sometimes it is diagnosed as Post Viral Fatigue Syndrome (PVFS).

The onset of M.E. can be gradual or sudden. The symptoms vary from person to person and they may be mild, moderate or severe. Whatever your experience, you share something in common with every other person with M.E. – you want to make sure you’re doing all the right things to help you get better. Coping with M.E. is a challenge but there are ways in which you can take control and learn to manage the illness effectively.

This booklet has been developed with the input of professionals and people with the illness to help you find out about M.E. We hope you find it useful.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers

Pacing for people with M.E.

Pacing is about balancing activity and rest to help manage M.E. and work towards recovery. Patients and many professionals recognise its value. This booklet is based on the practical experience and clinical practice of clinicians and therapists, and the feedback Action for M.E. has received from people with M.E.

Living with M.E. / Employers & teachers

An employer's guide to M.E.

This resource is for anyone employing or managing someone with mild to moderate M.E. and outlines the employment rights and support available for people with M.E., as well as providing advice on your legal responsibilities, reasonable adjustments, Access to Work, managing sickness absence and sick pay, and recruiting and supporting people with M.E.

Living with M.E. / Employers & teachers / Health & care professionals

M.E. and work

This resource aims to offer key information and signposting for people with M.E. who are in work, considering work in the future or actively seeking work now. We know that, for others, working or training is sadly not an option. Action for M.E. continues to support these individuals through our other support services.

Living with M.E. / Employers & teachers / Health & care professionals

SEE M.E. toolkit for professionals

This toolkit will be particularly useful for specialist M.E. clinicians, employment advisers, work coaches and careers guidance practitioners, but professionals working in social care, welfare advice and trades unions may also find it useful. It is designed to provide information, good practice advice, real case examples and practical resources, to enhance your ways of working with patients.

Please complete the following to receive your copy of the SEE M.E. toolkit for professionals (we may get in touch later to ask you if you have found the toolkit useful, and whether it has been of benefit to you or your organisation):

Health & care professionals / Employers & teachers

An overview of M.E.

This factsheet offers an overview of M.E. including symptoms, diagnosis and management options available. For a more detailed description of the condition and its impact, please see our longer booklet, All about M.E.

What is M.E.? / Health & care professionals / Employers & teachers / Living with M.E.

Close to collapse

M.E. is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from our 2015 survey, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

Living with M.E. / What is M.E.? / Employers & teachers / Health & care professionals / Make a difference / Research

M.E. Time to deliver

Myalgic Encephalomyelitis (M.E.), sometimes diagnosed as Chronic Fatigue Syndrome (CFS) is a long-term (chronic) fluctuating illness that causes symptoms affecting many body systems. Between December 2013 and February 2014, 2,018 people with M.E./CFS took part in a survey run by Action for M.E., the UK’s leading charity for people affected by M.E./CFS. This report presents key initial findings.

Living with M.E. / Research / Employers & teachers / Health & care professionals / Make a difference

M.E. in the workplace

When a member of staff has a long term illness, or is a carer, employers need to understand the condition which affects their lives and the legal responsibilities they have towards them. This leaflet offers information and support for employers and colleagues of people with M.E.

Living with M.E. / Employers & teachers

M.E. and higher education

This factsheet is provided for students with M.E./CFS to share with the support services at their college or university, offering information about M.E., its potential impact on studying, and how tutors can help.

Employers & teachers

Are you a young carer?

Are you a young carer for someone with M.E.? CFS? Post-Viral Fatigue Syndrome? Fibromyalgia? Or do you know somebody who is? A young carer is a child or young person up to 19 years old who is caring for a family member. This leaflet outlines the help, support and advice available, with signposting to services in your area.

Living with M.E. / Employers & teachers / Health & care professionals

Don't ignore M.E. poster

Download and print our new 'Don't ignore M.E.' awareness-raising poster. Don't have a printer? Contact us to order paper copies.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers / Make a difference

Don't ignore M.E. leaflet

Download and print our new 'Don't ignore M.E.' awareness-raising leaflet. Don't have a printer? Contact us to order paper copies. 

Make a difference / What is M.E.? / Living with M.E. / Employers & teachers / Health & care professionals