Myalgic Encephalomyelitis (M.E.) is a chronic fluctuating illness. It is commonly also known as Chronic Fatigue Syndrome (CFS or CFS/M.E.). Sometimes it is diagnosed as Post Viral Fatigue Syndrome (PVFS).
The onset of M.E. can be gradual or sudden. The symptoms vary from person to person and they may be mild, moderate or severe. Whatever your experience, you share something in common with every other person with M.E. – you want to make sure you’re doing all the right things to help you get better. Coping with M.E. is a challenge but there are ways in which you can take control and learn to manage the illness effectively.
This booklet has been developed with the input of professionals and people with the illness to help you find out about M.E. We hope you find it useful.
Pacing is about balancing activity and rest to help manage M.E. and work towards recovery. Patients and many professionals recognise its value. This booklet is based on the practical experience and clinical practice of clinicians and therapists, and the feedback Action for M.E. has received from people with M.E.
People with M.E. can use this resource to help their carer or other support professional understand how M.E. impacts them, and the best ways to support them. This is a working draft and we would love your feedback. We have also made a version in Word that you can download to complete electronically.
People with M.E. can use this resource to help their carer or other support professional understand how M.E. impacts them, and the best ways to support them. This is a working draft and we would love your feedback. We have also made a PDF version that you can print easily.
This resource is for anyone employing or managing someone with mild to moderate M.E. and outlines the employment rights and support available for people with M.E., as well as providing advice on your legal responsibilities, reasonable adjustments, Access to Work, managing sickness absence and sick pay, and recruiting and supporting people with M.E.
This resource aims to offer key information and signposting for people with M.E. who are in work, considering work in the future or actively seeking work now. We know that, for others, working or training is sadly not an option. Action for M.E. continues to support these individuals through our other support services.
This toolkit will be particularly useful for specialist M.E. clinicians, employment advisers, work coaches and careers guidance practitioners, but professionals working in social care, welfare advice and trades unions may also find it useful. It is designed to provide information, good practice advice, real case examples and practical resources, to enhance your ways of working with patients.
Please complete the following to receive your copy of the SEE M.E. toolkit for professionals (we may get in touch later to ask you if you have found the toolkit useful, and whether it has been of benefit to you or your organisation).
When you enter your details to receive a copy of the toolkit, we will store your personal information on our database to compile information on the locations and occupations of those interested in it. We would normally send an email to the email address you provide, asking how you found the toolkit and offering to keep in touch. We will not keep your personal details after this email has been sent to you.