Having M.E. is challenging, especially when you are a parent. If you are struggling to explain your condition to your children, we have created this children's booklet to help. This children's story uses the words of one of our junior members and follows Jack whose mum has M.E.
When your child gets sick it can be difficult for everyone in the family - especially young siblings who don't understand what is happening to their brother or sister. This children's booklet follows the story of Sophie whose big sister has M.E.
It can be difficult for children with M.E. to understand what is happening to their body and why they feel the way that they do. This children's booklet follows the story of 7 year old Chloe who has M.E. Here she shares her experiences with symptoms, resting and day-to-day life with M.E.
Myalgic Encephalomyelitis (M.E.) is a chronic fluctuating illness. It is commonly also known as Chronic Fatigue Syndrome (CFS or CFS/M.E.). Sometimes it is diagnosed as Post Viral Fatigue Syndrome (PVFS).
The onset of M.E. can be gradual or sudden. The symptoms vary from person to person and they may be mild, moderate or severe. Whatever your experience, you share something in common with every other person with M.E. – you want to make sure you’re doing all the right things to help you get better. Coping with M.E. is a challenge but there are ways in which you can take control and learn to manage the illness effectively.
This booklet has been developed with the input of professionals and people with the illness to help you find out about M.E. We hope you find it useful.
Our booklet, Pacing for people with M.E., is based on the practical experience and clinical practice of healthcare professionals and therapists, and the feedback Action for M.E. has received from people with M.E. It covers both pacing and pacing up (see above), and includes examples and practical tips. Please note this booklet is being reviewed and updated, with a new edition expected to be published by mid-December 2019. If you would like to be notified when the new edition is available to download, please get in touch.
People with M.E. can use this resource to help their carer or other support professional understand how M.E. impacts them, and the best ways to support them. This is a working draft and we would love your feedback. We have also made a version in Word that you can download to complete electronically.
People with M.E. can use this resource to help their carer or other support professional understand how M.E. impacts them, and the best ways to support them. This is a working draft and we would love your feedback. We have also made a PDF version that you can print easily.
This resource is for anyone employing or managing someone with mild to moderate M.E. and outlines the employment rights and support available for people with M.E., as well as providing advice on your legal responsibilities, reasonable adjustments, Access to Work, managing sickness absence and sick pay, and recruiting and supporting people with M.E.
This resource aims to offer key information and signposting for people with M.E. who are in work, considering work in the future or actively seeking work now. We know that, for others, working or training is sadly not an option. Action for M.E. continues to support these individuals through our other support services.