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A small organisation that regularly punches above its weight, Action for M.E. is leading, with others, a growing community working to create real change on the scale so urgently needed at a local, national and international level. Our 2016 – 2021 strategy sets out how we meet need now to improve the lives of people with M.E. while taking action to secure change for the future.

Along with paid roles, we work with amazing volunteers, and we could not achieve what we do without them. By volunteering for us, you can enhance your skills and experiences whilst also providing crucial support to those affected by M.E. in the UK.

We are currently underrepresented by men, non-binary and black and minority ethnic people in our workforce and would particularly welcome applicants from these groups.

Action for M.E. supports the Women in Business Charter: Bristol. The Charter recognises and supports the work of Bristol Businesses to create workplaces that are gender equal.

*This page has been created to inform people about potential working and volunteering opportunities with our organisation. We do not require the services of recruitment agencies regarding recruitment.*


DecodeME Recruitment and Support Worker

Salary: £14,330
Location: Keynsham office or home-based anywhere in the UK
Hours: 21 hours per week
Contract: One year fixed term post
Deadline for applications: 12 noon, Monday 16 August

Could you help us recruit 20,000 participants for the world’s largest DNA project for people with M.E./CFS and ensure active engagement and involvement from the M.E./CFS community throughout this four-year project? Working alongside people with ME to shape what we do and how we do it, your role will include handling queries about the project and providing support to the DecodeME project team. We are looking for someone with exceptional communication and organisation skills, the ability to prioritise and manage your own workload and to work closely with, and provide support to, the DecodeME project team and working groups.

We are currently underrepresented by men, non-binary and black and minority ethnic people in our workforce and would particularly welcome applicants from these groups.

We offer flexible working and take a positive approach to peer-support and self-care, with an Employee Assistance Programme available for staff and their immediate families. For more information and details on how to apply, please download our application pack.


Communications Manager

Salary: £29,700 (pro rata)
Location: UK-based with travel to Bristol/Keynsham
Hours: Full time (35 hours per week). We will also consider part-time/job share and flexible working requests.
Contract: One year fixed term post with possibility of extension
Deadline for applications: 12 noon, Monday 16 August

“Since being diagnosed, I have gone from working full time and a busy life singing in bars in evenings to being housebound, unable to work and awake only 6 hours a day. Lockdown isn't ending for me and I feel I've been forgotten again already” says Kelly, who has had M.E. for seven years.

Could you help us take action to end the ignorance, stigma and disbelief experienced by Kelly and the estimated 250,000 people living with M.E. in the UK?

We are looking for an experienced Communications Manager to deliver our communications strategy, raising the profile of M.E. and the impact it has on children and adults to increase awareness and understanding. This will include engaging with press & media and developing targeted campaigns, alongside leading the communications team.

If you’re passionate about storytelling and have a proven track record in communications management, we’d love to hear from you.

We are currently underrepresented by men, non-binary and black and minority ethnic people in our workforce and would particularly welcome applicants from these groups.

We offer flexible working and take a positive approach to peer-support and self-care, with an Employee Assistance Programme available for staff and their immediate families. For more information and details on how to apply, please download our application pack.


Sessional Advocacy Officer

Salary: £12.93 per hour (includes annual leave allowance)
Location: Keynsham Office or home-based
Hours: Temporary, part-time hours to be agreed; up to 77 per month.
Deadline for applications: We have extended our recruitment for this role until 9am Monday 16 August.

"None of the progress thus far would be possible without you, that's a fact! Every time you speak to someone on my behalf and then I have to speak to them, I always sense more empathy coming from them.” Recent advocacy client.

Are you passionate about social inclusion, equality and social justice? Do you have experience working in partnership with vulnerable people, like the client quoted above, who have health and support needs? We are seeking an experienced part-time Sessional Advocacy Officer on a temporary basis to reduce the current waiting list for this much-needed service. You’ll have the ability to deliver an empowerment model of advocacy, taking direction from clients to achieve their goals, with excellent organisational, interpersonal and communication skills. An understanding of the impact of M.E. or other disabilities or long-term conditions is a must.

We offer flexible working and take a positive approach to peer-support and self-care. Please download our application pack for more information and to apply.


Senior Trust Fundraiser

Salary: £24,179
Location: UK-based with travel to Bristol/Keynsham
Hours: Full time (35 hours per week). We will also consider part-time/job share and flexible working requests.
Deadline for applications: 12 noon, Sunday 1 August

“M.E. comes like a thief – it steals your health, your social life, your career, your dreams and so much more, with no way of knowing whether you’ll ever get them back,” says Laura who has had M.E. for eight years.

“In many ways my life hasn’t changed as a result of lockdown as I’ve had over 20 years’ experience of learning the skills to cope; it’s as if the rest of the world has joined my world…to know there’s an organisation campaigning for those with the condition and their carers has been of great support,” says David who has been a supporting member of Action for M.E. for 25 years.

Could you support people like Laura and David by creating compelling applications to raise funds through trusts and foundations? We are looking for an experienced trust and grants fundraiser who is outcomes focused and eager for a challenge. The ideal candidate would have a keen eye for detail with a flair for storytelling. You’ll be responsible for leading our trust programme, cultivating relationships and producing creative, impact-focused reports to increase our income and enable us to reach more children and adults with M.E. to ensure they get the support they urgently need.

If you’re passionate about storytelling and have a proven track record of working on your own initiative as well as part of a close knit team, we’d love to hear from you.

We are currently underrepresented by men, non-binary and black and minority ethnic people in our workforce and would particularly welcome applicants from these groups.

We offer flexible working and take a positive approach to peer-support and self-care, with an Employee Assistance Programme available for staff and their immediate families. For more information and details on how to apply, please download our application pack.

Follow the link to the application pack to apply.


Other volunteer roles

Much of the work we do is made possible by our fantastic volunteers. Some have been with us for many years, while others gain valuable work experience over shorter periods. Supporting our administrative, communications, marketing, fundraising and support work, some of our volunteers work with us in our Bristol office, while others make their essential contribution from home.

  • Some key services for our Young Person's Community are led by young volunteers (aged 18 and under) living with M.E. Some contribute to our community forum, helping users feel less isolated and more confident about making connections. Others write to those children and young people severely affected by M.E., without the expectation of a reply. Interested? Find our more.
  • Action for M.E.’s free advocacy supports adults (age 18 and over) living with M.E., and is delivered through a combination of paid staff and volunteer advocates. If you're interested in becoming a volunteer advocate, we would love to hear from you.

Pro bono support

A range of medical, research and professional advisors provide an invaluable network of support for Action for M.E. on a pro bono basis.

All have one thing in common: they are hugely valued not just by our staff and Trustees, but also the people with M.E. they help us support. We are immeasurably grateful value for the time and energy they spend enriching our work, and helping us reach even more people affected by M.E.

If this sounds like something you're interested in, please get in touch.