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Work or volunteer with us

A small organisation that regularly punches above its weight, Action for M.E. is leading, with others, a growing community working to create real change on the scale so urgently needed at a local, national and international level. Our 2016 – 2021 strategy sets out how we meet need now to improve the lives of people with M.E. while taking action to secure change for the future.

Along with paid roles, we work with amazing volunteers, and we could not achieve what we do without them. By vounteering for us, you can enhance your skills and experiences whilst also providing crucial support to those affected by M.E. in the UK.

We are currently underrepresented by men, non-binary and black and minority ethnic people in our workforce and would particularly welcome applicants from these groups.

Action for M.E. supports the Women in Business Charter: Bristol. The Charter recognises and supports the work of Bristol Businesses to create workplaces that are gender equal.

*This page has been created to inform people about potential working and volunteering opportunities with our organisation. We do not require the services of recruitment agencies regarding recruitment.*


Family Support Officer

Salary: £24,000 pro rata (£12,000)
Location: Keynsham office or home-based anywhere in the UK
Hours of work: Part-time (17.5 hours per week)
Deadline for applications: 5pm Wednesday 3 March

"Each time I have contacted you for advice I have been very satisfied. With every enquiry I have gained more knowledge which helps me manage my daughter's illness together with her. Thank you all for your continued help."

Young people with M.E. and their parents, like our client quoted above, face many challenges, from the stigma that sadly persists about this neurological condition, to securing education that meets the young person's needs. Working with parents and sometimes other family members, our new Family Support Officer will share practical information, provide emotional support and deliver single-issue advocacy to help navigate these challenges. Proven experience in delivering information, support and/or advice services is essential, alongside working knowledge of UK support systems, and a sound understanding of safeguarding children and vulnerable adults. You'll have excellent communication, engagement and interpersonal skills, underpinned by a empathic, non-judgemental approach, and a passion for making a positive difference as part of our busy Crisis, Advocacy and Support Service.

If this sounds like you, we'd love to hear from you. For more information and to apply, please download our Family Support Officer application pack.


Volunteer Advocate

Salary: Unpaid/volunteer
Location: Scotland
Hours of work: two hours per week

Our service is currently expanding in Scotland. Are you a good listener with an empathetic, professional and methodical approach? Do you have two hours a week to support vulnerable adults with myalgic encephalomyelitis (M.E.)/chronic fatigue syndrome (CFS)? Action for M.E.’s UK-wide advocacy service, expanding in Scotland, supports adults with M.E./CFS to understand their rights, make informed choices, and have their views and wishes heard and respected, dealing with issues including health, social care, housing and employment. You’ll work entirely online/by phone to meet and represent clients, agree an action plan, undertake research, contact professionals and more. Full training, support and supervision will be provided by our experienced, friendly team.

For more information and details on how to apply, please download our Volunteer Advocate application pack.


Other volunteering

Much of the work we do is made possible by our fantastic volunteers. Some have been with us for many years, while others gain valuable work experience over shorter periods. Supporting our administrative, communications, marketing, fundraising and support work, some of our volunteers work with us in our Bristol office, while others make their essential contribution from home.

  • Action for M.E.’s Mentor M.E. peer-support network is a five-year project to develop a network of volunteer peer mentors supporting people living with M.E. in Scotland. If you have direct experience of M.E. (this can include caring for a friend or family member), are aged 18 or over, and live in Scotland, we'd love to hear from you.
  • Some key services for our Young Person's Community are led by young volunteers (aged 18 and under) living with M.E. Some contribute to our community forum, helping users feel less isolated and more confident about making connections. Others write to those children and young people severely affected by M.E., without the expectation of a reply. Interested? Find our more.
  • Action for M.E.’s free regional advocacy supports adults (age 18 and over) living with M.E. in the Midlands and South West, and is delivered through a combination of paid staff and volunteer advocates. If you're interested in becoming a volunteer advocate, we would love to hear from you.

Pro bono support

A range of medical, research and professional advisors provide an invaluable network of support for Action for M.E. on a pro bono basis.

All have one thing in common: they are hugely valued not just by our staff and Trustees, but also the people with M.E. they help us support. We are immeasurably grateful value for the time and energy they spend enriching our work, and helping us reach even more people affected by M.E.

If this sounds like something you're interested in, please get in touch.