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A small organisation that regularly punches above its weight, Action for M.E. is leading, with others, a growing community working to create real change on the scale so urgently needed at a local, national and international level.

Our Shaping our future together strategy, developed in partnership with children, young people and adults with M.E., their loved ones and carers, and others who share our values and ambitions, sets out our ambitious goals which we believe will help us end the decades of ignorance, injustice and neglect faced by people with M.E.

We are currently underrepresented by men, non-binary and black and minority ethnic people in our workforce and would particularly welcome applicants from these groups.

Action for M.E. supports the Women in Business Charter: Bristol. The Charter recognises and supports the work of Bristol Businesses to create workplaces that are gender equal.

*This page has been created to inform people about our organisation's potential working and volunteering opportunities. We do not require the services of recruitment agencies regarding recruitment.*

Family Support Officer

Hours of work: Part-time (24.5 hours a week) We also consider job-share and flexible working requests.

Location: This role can be home-based anywhere in the UK or at our office in Keynsham near Bristol.

Salary: £26,082 pro-rata (£18,257.40)

"Each time I have contacted you for advice I have been very satisfied. With every enquiry, I have gained more knowledge which helps me manage my daughter's illness together with her. Thank you all for your continued help."

Young people with M.E. and their parents, like our client quoted above, face many challenges, from the stigma that sadly persists about this neurological condition, to securing education that meets the young person's needs. Working with parents and sometimes other family members, our Family Support Officer will share practical information, provide emotional support, and deliver single-issue advocacy to help navigate these challenges. Proven experience in delivering information, support and/or advice services is essential, alongside working knowledge of UK support systems and a sound understanding of safeguarding children and vulnerable adults. You'll have excellent communication, engagement and interpersonal skills, underpinned by an empathic, non-judgemental approach, and a passion for making a positive difference as part of our busy Information and Support team.

We offer flexible working and take a positive approach to peer-support and self-care, with an Employee Assistance Programme available for staff and their immediate families.

Closing date for applications: Friday 17th June 2022 at 9am.

Interviews will take place: Tuesday 28th June and Wednesday 29th June 2022. (Interviews will be held via Zoom)

For more information on the position or to apply for the role, download our application pack.


Hours of work: Part-time - sessional - as agreed

Location: Home-based

Salary: Self Employed - £40 per hour

Could you offer pastoral support and/or spiritual accompaniment to someone with M.E?

Action for M.E. is committed to patient-led, whole-person care. We believe that people with M.E. have needs that can be physical, emotional and spiritual. Working within a multi-disciplinary Healthcare Team which includes doctors, physiotherapists and counsellors, our chaplains offer pastoral support and spiritual accompaniment to people of all faiths, and to those who are uncertain or have none.

We are looking for someone who is an ordained or authorised minister/lay leader/ spiritual director within a recognised faith community who has training in counselling/spiritual direction and experience working with chronic illness. Sensitivity in listening and empathy with limitations and vulnerabilities is essential as is the willingness to learn about how M.E can affect people’s lives.

Closing date for applications: Tuesday 31st May 2022 at 5pm.

Interviews will take place in June 2022.

For more information on the position, please download our application pack.

Volunteer roles

Much of the work we do is made possible by our fantastic volunteers. Some have been with us for many years, while others gain valuable work experience over shorter periods. Supporting our administrative, communications, marketing, fundraising, and support work, some of our volunteers work with us in our Bristol office, while others make their essential contribution from home.

  • Some key services for our Young Person's Community are led by young volunteers (aged 18 and under) living with M.E. Some contribute to our community forum, helping users feel less isolated and more confident about making connections. Others write to those children and young people severely affected by M.E., without the expectation of a reply. Interested? Find our more.
  • Action for M.E.’s free advocacy service supports adults (age 18 and over) living with M.E., and is delivered through a combination of paid staff and volunteer advocates. If you're interested in becoming a volunteer advocate, we would love to hear from you.

Pro bono support

A range of medical, research, and professional advisors provide an invaluable network of support for Action for M.E. on a pro bono basis.

All have one thing in common: they are hugely valued not just by our staff and Trustees, but also the people with M.E. they help us support. We are immeasurably grateful value for the time and energy they spend enriching our work, and helping us reach even more people affected by M.E.

If this sounds like something you're interested in, please get in touch.