Crisis, Support and Advocacy Service
In April 2020, we launched our Crisis, Support and Advocacy Service for anyone living with or supporting someone with M.E./CFS of any age, anywhere in the UK.
Our team has experience and understanding of living with M.E. Our supportive “brain-fog busting” approach aims to help you break issues down so they feel less overwhelming, explore priorities, outline options available to you, and frame questions you want to ask professionals.
- share information and support around all aspects of living with M.E., for adults, parents and children and young people, including welfare benefits processes, rights and entitlements, social care, symptom management, accessing health services, liaising with your child's school and getting reasonable adjustments at work
- offer emotional support via active, empathic listening, and connect you with other people with M.E., particularly during these challenging times
- source practical assistance near to you, such as your local mutual aid group, parish council and/or community hub; we can also source local producers/food outlets who are making home deliveries
- for more in-depth support in complex cases, refer you to Action for M.E. advocacy for adults or family support and advocacy (for young people 18 and under, and their parents/carers).
Update Monday 22 March 2021: To ensure we can effectively support you as we train new staff, we are likely to close earlier than our usual 5pm between now and Easter. Normal service will resume in April. Thank you for your patience.
Please note that our team are not medically trained and are unable to offer specialist legal, employment or medical advice, or counselling, befriending or specialist mental health support, though we can signpost to specialist organisations that do.
Funding from the Coronavirus Community Support Fund,
distributed by The National Lottery Community Fund, has helped our Crisis,
Advocacy and Support People reach more people with M.E. Thank you to these funds and to the
Government for making this possible.
Action for M.E. team and resources
Working from home, having closed our Keynsham office during the Coronavirus pandemic, our staff team continue to provide the services and support you need. We are hugely grateful to our volunteers, who continue to support our work from home.
- Our staff team are calling all our Supporting Members to make sure you have the information and support you need. Calls are taking place on weekdays from spring 2020 onwards.
- We are keeping our website up to date with the latest on Coronavirus and M.E., and sharing these updates on social media, specifically Facebook, Twitter and Instagram. Please do use social media to share your thoughts, ideas and concerns with us, and we will do all we can to support you and others with M.E.
- Don't forget you can also join one of our peer-support forums for adults with M.E. and 18s and under with M.E. They are all completely free and users tell us they feel better supported, and less isolated.
- Given the Government measures asking everyone to stay at home, sending resources by post is taking much longer than usual. You can always download our booklets and factsheets for free.
- Full of news, research updates and features by and for people with M.E., our membership magazine InterAction is published in April, September and December. Not a Supporting Member? Join us today so you don't miss a copy.