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Family support and advocacy

Family support and advocacy

In more complex cases, our Family Support and Advocacy Worker can work with children, young people and parents to share one-to-one information, advice and advocacy support by phone and email, addressing barriers to education, healthcare and social services for under 19s with M.E. (diagnosed or suspected).

For a referral to this service, please contact our Crisis, Advocacy and Support Service.

Sharon, whose son has M.E., told us:

“You have been the light that has helped us navigate these most challenging of months, providing bridges between agencies and disciplines, with your experience, expertise and calm, unwavering support.”

If you're struggling and need someone to talk to you, contact us today. Please note that, while there may be a wait for a referral to our Family Support and Advocacy Worker, our team will do what they can to share information and support in the meantime.

We also offer:

  • up-to-date information and guidance in our website sections for under 19s and their parents/carers
  • support and skills for teachers, doctors, social workers and other professionals working with families affected by M.E.
  • a safe, supportive community for young people 18 and under, which is free to join and includes a range of peer-support options.

We are grateful to the Masonic Charitable Foundation for supporting our work with children and young people with M.E., and their parents and families.