Based on the expertise and experience of people with M.E. and Pete Gladwell, Clinical Specialist Physiotherapist, Bristol NHS M.E./CFS Service, Pacing for people with M.E. also reflects the 2021 NICE guideline for M.E. The essentials of pacing are covered on 14 pages in the “Your step-by-step pacing guide” (pages 14 to 27). Other things you may find useful in your self-management toolkit come under the “Pacing as part of self-management” section (pages 28 to 52).
Our Healthcare Services include a doctor, physiotherapists, counsellors and chaplains, who between them have many years experience working with people with M.E. Please read information about the service you are interested in, including details of fees, before you complete this form. As a charity, we charge fees only to cover our costs and aim to keep these affordable. Help with up to 50% of fees may be available, depending on your circumstances.
“It can be very lonely coping with chronic health problems. Action for M.E. is a valuable resource and it’s reassuring to know that there are wonderful people like you who care and are doing as much as they can to help others.” This leaflet gives a brief overview of M.E. and its impact and signposts to information and support from Action for M.E.
This resource is for anyone considering facilitating peer mentoring for people living with or caring for someone with M.E./CFS. Much of it will be applicable to other fluctuating and/or energy-limiting health conditions, including Long Covid. It shares learning from Action for M.E.’s five-year Mentor M.E. peer-mentoring project, setting out how we approached this, and some tools that might be helpful.
Developed by North Bristol NHS Trust M.E. service and Action for M.E., this resource aims to support people with M.E. to help carers and/or other professionals understand how M.E. impacts them, and the reasonable adjustments they need. First published in 2018, it was updated in 2022 and has been reviewed and approved by members of West of England Sight Loss Council. This means it can be accessed and used by people with a visual impairment who rely on screen readers. Sharing your feedback about this resource, via our brief anonymous feedback form, will help us make it even better - thank you.
Given that M.E. is a neurological condition, people with M.E. should be eligible for a free winter flu jab according to government guidance. However, this isn’t quite as straightforward as it should be, and we do hear from people whose GPs consider them not eligible. We have produced a resource (updated November 2021) you can share with your health professional about this, which also signposts to further information for doctors, including an online learning module about M.E.