Useful resources

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Are you missing M.E.?

“It can be very lonely coping with chronic health problems. Action for M.E. is a valuable resource and it’s reassuring to know that there are wonderful people like you who care and are doing as much as they can to help others.” This leaflet gives a brief overview of M.E. and its impact and signposts to information and support from Action for M.E.

Peer mentoring guide

This resource is for anyone considering facilitating peer mentoring for people living with or caring for someone with M.E./CFS. Much of it will be applicable to other fluctuating and/or energy-limiting health conditions, including Long Covid. It shares learning from Action for M.E.’s five-year Mentor M.E. peer-mentoring project, setting out how we approached this, and some tools that might be helpful.

NICE guideline and GP training

Use our template letter to signpost your GP to the updated NICE guideline, and Dr Nina Muirhead's CPD-accredited free online learning module on the diagnosis and management of M.E., complemented by our Learn about M.E. podcast.

This is M.E. (Word version)

People with M.E. can use this resource to help their carer or other support professional understand how M.E. impacts them, and the best ways to support them. This is a working draft and we would love your feedback. We have also made a PDF version that you can print easily.

Why I'm eligible for the free flu jab

Given that M.E. is a neurological condition, people with M.E. should be eligible for a free winter flu jab according to government guidance. However, this isn’t quite as straightforward as it should be, and we do hear from people whose GPs consider them not eligible. We have produced a resource you can share with your health professional about this, which also signposts to further information for doctors, including an online learning module about M.E.

Priority for the Covid-19 booster

This Action for M.E. template letter/email sets out why people with M.E. should be a priority for the Covid-19 booster. We would encourage you to edit it to add your own voice for the best chance of a personalised response, and please let us know how you get on.

This is M.E. (PFD version)

People with M.E. can use this resource to help their carer or other support professional understand how M.E. impacts them, and the best ways to support them. This is a working draft and we would love your feedback. We have also made a version in Word that you can download to complete electronically.

Assessing people with M.E. under the Mental Health Act

M.E. is not a mental health condition, and so should not be used as the basis for detention under the Mental Health Act. However, a small minority of people with M.E. are being considered for assessment for detention under the Mental Health Act, or being detained, each year. This factsheet explains what assessment and detention involves, and what your rights are if detained, if you are an adult living in England and Wales.