Useful resources
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This brief guide has been developed in collaboration with young people affected by M.E. to support teachers and educators to better understand M.E./CFS. It offers practical advice and adjustments that can be incorporated into your pupil’s educational programme.

Parliamentary briefing for MPs debate on M.E.

Briefing produced by Action for M.E., #MEAction, the ME Association and the ME Trust, for parliamentarians in advance of the Westminster debate, M.E.: treatment and research, in June 2018.

M.E./CFS: a guide for pharmacy teams

In response to the growing need for community pharmacists to take a greater role in the delivery of primary care for people with long-term conditions, Action for M.E. has launched an M.E. information resource for community pharmacy teams across the UK. This includes key information on pharmacological management of M.E., issues with polypharmacy and delivering pharmacy services to people with M.E.

M.E./CFS in children and young people

A lack of understanding about M.E. and its impact mean that some young people and their families still face considerable challenges in accessing appropriate care and support. This resource for Children and Families Social Workers aims to improve this situation by offering information and practical advice so they can better support their clients, and work more effectively with other health and care professionals.

Supporting your constituent with M.E.

This information resource was developed by the All Party Parliamentary Group on M.E. in May 2016, and is intended to help parliamentarians better support people with M.E.

Implementing the Care Act

This briefing sets out local authorities’ key responsibilities under the Care Act 2014 in relation to people with long-term, fluctuating conditions with care and support needs. It was produced collaboratively by Action for M.E., Arthritis Research UK, Crohn’s and Colitis UK, ME Association, MS Society, NAT (National AIDS Trust), National Rheumatoid Arthritis Society and Parkinson’s UK, and published in February 2016.

An employer's guide to M.E.

This resource is for managers and employers supporting anyone with mild to moderate M.E. and outlines the employment rights and support available for people with M.E., as well as providing advice on your legal responsibilities, reasonable adjustments, Access to Work, managing sickness absence and sick pay, and recruiting and supporting people with M.E.

Teachers: how can I help?

The best way to support your pupil with M.E. and their family is to be led by them and their individual circumstances. This resource for teachers and educational staff has been developed in collaboration with young people with M.E./CFS, offering guidance on advice and adjustments that can be incorporated in to your pupil’s educational programme.

Forward ME on managing long Covid

Research has indicated that up to 10% of anyone who contracts a viral infection will experience post-viral fatigue syndrome (also known as M.E./CFS), including those with Covid-19. This open letter from Forward ME (September 2020) outlines a best practice approach to management and rehabilitation for healthcare professionals working with this patient group.