M.E. is a serious, long term, fluctuating condition affecting 250,000 people in the UK and 17 million worldwide.
Two sets of UK guidelines offer healthcare professionals information and advice about managing M.E.:
However, professionals and people with M.E. alike tell us they would like more information and support around the health and social care available.
Aviva’s 2013 Health of the Nation Index survey found that 25% of GPs noted an increase in M.E. patient numbers over the past year, while 39% found M.E. to be the most challenging condition for referral.
Action for M.E.’s 2015 survey of 850 people with M.E. additionally found a considerable gulf between the support needs of people with M.E. and social care provision.
By offering evidence-based information and support, we hope to improve patient care for all those affected by M.E. in the UK.