M.E. is a serious, long term, fluctuating condition affecting 250,000 people in the UK and 17 million worldwide.
Some guidelines do exist for UK healthcare professionals regarding diagnosing and managing M.E. However, professionals and people with M.E. alike tell us they would like more information and support around the health and social care available.
Aviva’s 2013 Health of the Nation Index survey found that 25% of GPs noted an increase in M.E. patient numbers over the past year, while 39% found M.E. to be the most challenging condition for referral.
Action for M.E.’s 2015 survey of 850 people with M.E. additionally found a considerable gulf between the support needs of people with M.E. and social care provision.
By offering evidence-based information and support via our website, webinars (see below) and printed resources, we hope to improve patient care for all those affected by M.E. in the UK.
Action for M.E.'s Webinar for GPs series offers expert information and support for primary healthcare professionals on aspects of M.E. including diagnosis, symptom-management, co-morbidities and supporting effective self-management.
Our webinar in May 2017 focused on M.E., postural orthostatic tachycardia syndrome (POTS) and autonomic dysfunction, led by our medical advisor Prof Julia Newton, Clinical Professor of Ageing and Medicine, University of Newcastle; and Dr Lesley Kavi, a GP with a special interest in POTS.
Our November 2017 webinar was led by pharmacist and Action for M.E. volunteer, Emily Beardall, who also has M.E. A recording of the webinar, and its accompanying slides, are now available to view online. Aimed at GPs, pharmacists, dentists, community nurses, OTs, physiotherapists, nurses and midwives, it will support you to describe the characteristic symptoms of M.E. and understand how they affect daily life; identify and apply practical measures to enhance consultations and treatment planning; have an overview of evidence-based treatment and where to find further guidance; learn more about research into the underlying pathology and potential symptom management; and signpost to effective self-management resources and support.
Our next webinar will take place on Tuesday 16 January 2018. More details will be posted here and in our news feed as soon as they become available.
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