Action for M.E. believes that everyone with M.E. is entitled to personalised, patient-led healthcare that best meets their needs. This report reveals how Clinical Commissioning Groups, Health Boards and Health and Social Care Trusts in England, Wales, Scotland and Northern Ireland are failing to meet these needs - and what we are doing about it.
M.E. is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from our 2015 survey, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.
Myalgic Encephalomyelitis (M.E.), sometimes diagnosed as Chronic Fatigue Syndrome (CFS) is a long-term (chronic) fluctuating illness that causes symptoms affecting many body systems. Between December 2013 and February 2014, 2,018 people with M.E./CFS took part in a survey run by Action for M.E., the UK’s leading charity for people affected by M.E./CFS. This report presents key initial findings.