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M.E. in Scotland

M.E. in Scotland

Action for M.E. leads a number of projects to improve the lives of children, young people and adults living with M.E. in Scotland, including working with professionals and policy-makers to increase access to appropriate care and support, and partnering with the Scottish Government Chief Scientist Officer to fund a PhD studentship [LINK] at the University of Edinburgh. For more information about any of the projects mentioned here, please get in touch with our Scotland Project Co-ordinator.

Mentor M.E.

A volunteer peer-mentoring support network for people affected by M.E. in Scotland, Mentor M.E. is a five-year project funded by the Health and Social Care Alliance Scotland (the Alliance) and the Scottish Government from the Transforming Self-Management in Scotland Fund. By providing tailored training and skills development, matching for volunteer mentors and mentees and ongoing one-to-one and group support, we are developing a strong sustainable network led by people living with M.E. Find out more on our Mentor M.E. page.

Educate M.E.

M.E. is the biggest cause of long-term school absence, but many children and young people tell us that their friends and teachers struggle to understand the condition and its impact on them. Thanks to funding from the Big Lottery, we have began working on a 12-month project in March 2018 to consult and work in partnership with children and young people with M.E., their families and interested education professionals in Scotland. Our aim is that families living with in Scotland have their voices heard, and their needs met.

Through this partnership, we will raise awareness and understanding of M.E., targeting not just teachers but also children’s and young people’s peers; identify support already available for children and young people with M.E. and other long-term conditions, and what works well; and ask schools to work with us to put best practice in place.

Inform M.E. Scotland

A Scottish Government funded project to educate health and social care professionals, Inform M.E. Scotland has seen us develop and deliver a series of webinars for doctors, nurses, occupational therapists and other healthcare professionals in Scotland. You can find recordings and accompanying slides on our page for health professionals, along with links to two professional briefings: one for primary care professionals, and one for occupational therapists.

Working in collaboration with local support groups and stakeholders, Inform M.E. Scotland’s project report sets out the challenges that contribute to the well-documented health inequalities for people with M.E., and the work required to address these.

Information and support

Large parts of Scotland are very rural, meaning people with M.E. can find themselves even more isolated. Our M.E. Friends Online forum offers a safe and friendly source of peer-support, plus our Information and Support Officers are here to help with questions about accessing healthcare, including getting a diagnosis, treatment and management, setbacks and relapses, welfare benefits and social care, and education and employment.

We also have a number of resources produced by and for patients and professionals living and working with M.E. in Scotland: