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Living with M.E.

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Newly diagnosed

Newly diagnosed

If you have just been diagnosed, you may be relieved that finally you know what is causing your symptoms – or you may feel bewildered, angry, disbelieving or confused.

Action for M.E. is here to help. A good place to start is our booklet, Newly diagnosed with M.E., which has advice for you and your GP, facts about M.E., guidance to help you be an active partner in your own care, suggestions for questions for you to ask your GP and information about existing guidelines.

The booklet was formally endorsed by the National Institute for Health and Care Excellence (NICE) in December 2015, as it signposts to, and quotes from, some of the existing recommendations in the NICE guideline on M.E., specifically:

  • the time in which a diagnosis should be made
  • the right of all patients to shared decision making
  • the need for individualised, person-centred programmes of symptom management and support for people with M.E.