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Some frequently asked questions about M.E. Please contact us if you can't find the information you need.

Q. What is the impact of M.E.?

A. Even in its mildest form, M.E. can have a significant impact on an individual’s life, and not just on their health. A lack of understanding and awareness about M.E. means patients can experience…
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What is M.E.? / Living with M.E.


Q. What is the latest research on M.E.?

A. New research evidence about M.E. is emerging all the time, and it can be difficult to know which developments are important and which are not.Cort Johnson’s Health Rising blog offers a review…
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What is M.E.? / Living with M.E.


Q. What services and support does Action for M.E. offer?

A. We offer a range of booklets and factsheets covering most aspects of living with M.E., employment and education, caring for somebody with M.E. and welfare benefits. These can be ordered by post…
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What is M.E.? / Living with M.E. / Make a difference


Q. Am I eligible for welfare benefits?

A. The welfare benefits system is very complex and we recommend getting a complete benefit check done to see what you may be eligible for. This will depend on your age, income and personal circumstances.Your…
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Living with M.E.


Q. Can I get help with care at home?

A. Social care is help provided to people in their own home or in a care home. It may include home helps, meals-on-wheels or personal care - help with getting up, washing, dressing, feeding or going…
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Living with M.E.


Q. Can I see a specialist?

A. Sometimes your GP may refer you to a specialist. A visit to a specialist is known as secondary care and can only be arranged through your GP.Depending on your symptoms, you may meet a number…
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Living with M.E.


Q. How can you help me apply for welfare benefits?

A. If you have M.E. or care for someone who has M.E., you may be entitled to claim benefits. Action for M.E. produces a range of factsheets about benefits available, including detailed information…
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Living with M.E.


Q. How can I explain M.E. to my family and friends?

A. Whether you’ve been newly diagnosed or have been living with M.E. for some time now, telling friends, family and children you have the condition can seem like a daunting task. Many people have…
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Living with M.E.


Q. How can my employer help?

A. Under the Equality Act 2010, someone who has “a physical or mental impairment that has a substantial and long-term adverse effect on the ability of an employee to carry out normal day-to-day…
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Living with M.E.


Q. How can my GP help?

A. In order to diagnose you as having M.E., your GP will need to know what symptoms you've been experiencing. It can be hard to remember every symptom when you're put on the spot, especially because…
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Living with M.E.


Q. What treatment approach is right for me?

A. We do not recommend any individual treatments or management approaches for people with M.E. Instead, we offer key information to allow people with M.E. to make informed decisions.When health…
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Living with M.E.


Q. How do other parents with M.E. cope?

A. Action for M.E. often hears from parents who have found ways to cope with their M.E. at the same time as raising children.Here’s some of the things mums and dads have told us: “Knowing others…
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Living with M.E.