Across the UK, M.E. organisations and support groups host concerts, conferences and other events to raise awareness of M.E., and meet local professionals and decision-makers. If you would like your event listed here, please get in touch.
M.E. awareness concert
Organised by M.E. Support in Glamorgan (MESiG)
6.30pm, Saturday 13 May
Freedom Church, Trade Street, Cardiff CF10 5DT
MESiG is hosting a concert for ME. Awareness Week and the culmination of their #SpeakforME campaign. The line-up features female choir Sororitas, solo singer Sunita Menon and Bollywood dancing courtesy of Sunita’s daughter Kaavya Sudheer and her group. Tickets are £10 for adults, £7 for concessions, and free for children under 12.
National M.E. Awareness Week conference
Organised by reMEmber
2pm, Saturday 13 May
The Martlets Hall, Burgess Hill, RH15 9NN
Speakers include Prof Kevin Davies, Brighton and Sussex Medical School, Dr Charles Shepherd, ME Association, who will talk about ongoing research; Hannah Clifton who will talk about the M.E. Trust’s new domiciliary service. Tickets cost £4. For more information please contact Janice Kent on 01273 831733 or send an email.
Liverpool M.E. service open day
Organised by Liverpool CFS/ME service
11am to 2pm, Wednesday 17 May
Ward 10, Second Floor, Alexander Wing, Broadgreen Hospital, Liverpool, L14 3LB. Tel: 0151 282 6185.
The Liverpool CFS/ME service invites you to join them at an open day to celebrate their new out-patients facility. You can meet other people with M.E., find information about local groups, and try a relaxation or art session. Refreshments will be provided. For more information email Deborah Roberts.
M.E: a major health crisis
Organised by the M.E Support Isle of Man Group
7.30pm, Wednesday 24 MayOnchan Methodist Church, Main Road, Onchan IM3 1AC
Linda Tannenbaum, Chief Executive, Open Medicine Foundation, will talk about the latest research into M.E. at this public meeting. Mrs Tannenbaum established the End M.E/CFS Project along with geneticist Prof Ron Davis, Stanford University. The M.E Support Isle of Man Group will use this opportunity to press for additional resources to be devoted to the treatment of M.E.
The forgotten voice: invisible illnesses you need to remember
Organised by Marlene Lowe
6.30pm to 9pm, Thursday 25 May
Holiday Inn Edinburgh, 132 Corstorphine Road, Edinburgh, EH12 6UA
This networking event brings together decision makers and those that living with an invisible illness to start speaking about how to best manage work-life balance in ways that work for them as individuals.
Seeking Solutions for M.E. and Fibromyalgia
Organised by Hope 4 ME & Fibro Northern Ireland
2pm to 6pm, Tuesday 30 May
Parliament Buildings, Stormont, Belfast BT4 3ST
Hope 4 ME & Fibro Northern Ireland have invited experts from the USA, Norway and the UK to speak at about the challenges faced by medical professionals in treating M.E. and fibromyalgia. Speakers include Linda Tannenbaum, CEO, Open Medicine Foundation (USA), Prof Olva Mella, Bergen University Hospital, David Tuller, Dr William Weir and Dr Christine McMaster. Please note this event is open to medical professionals and key health-decision makers only. If you would like your GP to attend, please contact Hope 4 ME & Fibro Northern Ireland.
Along with the information and advice available from Action for M.E., local support groups are a fantastic resource for people affected by this complex condition. They be a great source of:
You can find your nearest group by searching our local services directory using your postcode.
If your group urgently needs support to keep it running, please get in touch so that we can add it to this page.
The group urgently needs new trustees in order to continue functioning. Anyone who is interested in applying to be a trustee is asked to contact Patricia de Wolfe by emailing firstname.lastname@example.org.The issue of whether or not the group can continue running will be discussed at the group's AGM on June 17 at the Copleston Centre Cafe in Peckham from 3pm.
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