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Living with M.E.

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Some specialist services offer cognitive behavioural therapy (CBT) for M.E.

The NICE guideline describes CBT as: “An evidence-based psychological therapy that is used in many health settings, including cardiac rehabilitation and diabetes management.

“It is a collaborative treatment approach. When it is used for CFS/M.E., the aim is to reduce the levels of symptoms, disability and distress associated with the condition.

“A course of CBT is usually 12–16 sessions. The use of CBT does not assume or imply that symptoms are psychological or ‘made up’.”

CBT is not a cure but it may help some people to cope with the impact of the illness. A 2011 research study (PACE trial) identified an improvement for those patients that undertook CBT and GET over and above any benefit of standard medical care alone (14-16% improvement), which included advice on self-management.

In 2014, we surveyed more than 2,000 people with M.E. Our resulting M.E. Time to deliver report shows that:

  • 33% of respondents had tried CBT.
  • Of these, 54% said they found it helpful or very helpful, 34% said it resulted in no change, and 12% said it made them a bit or much worse.

The NICE guideline makes it clear that CBT “should be delivered: by a suitably trained [GET or CBT] therapist with experience in M.E., under appropriate clinical supervision.”

People with M.E. who wish to try CBT should ask to be referred to a specialist M.E. clinic, where this expertise exists, if at all possible. Details of clinics are available in our services directory.

There have been no published randomised controlled trials of CBT in children or those who are severely affected by M.E.