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Living with M.E.

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Welfare benefits

Information, support and welfare benefits

Action for M.E. offers a free Information and Support Service for people with M.E., their carers and parents. Our friendly Information and Support team understands the challenges of living with M.E., and includes two part-time specialist welfare benefits and employment advisors.

JANUARY 2019 UPDATE: Due to staff illness, we are unfortunately unable to refer anyone to our part-time specialist welfare benefits and employment advisors until further notice. In the meantime our Information and Support team can help with other queries and signpost to other organisations.

Please note our advisors are not medically trained. If you have an issue relating to your symptoms or health condition, please contact your own GP/health centre; if out of hours, contact NHS 111 or, in an emergency, call 999.

Our Information and Support team can provide advice and information, including about other organisations which may be able to help. You can contact them:

  • by email or
  • by phone on 0117 927 9551, choosing option one (Monday to Friday 10am to 4pm).

If you have looked at our welfare benefits factsheets (below) and resources for employees and employers, and have additional questions about your situation, please get in touch. We are a small team and, while we try to respond to all enquiries as quickly as possible, the demand for our services can exceed our capacity. At certain times there may be a delay, and we appreciate that this can be frustrating. Please be assured that we respond to requests for help as we can. Please note that the primary focus of this service is to support those with multiple and complex needs who do not have other support networks available.

Our welfare benefits factsheets

If you have M.E. or care for someone who has M.E., you may be entitled to claim welfare benefits. Action for M.E. produces a range of factsheets about the benefits available, including information on applying and, if necessary, appealing. You can find links to these below.

If you need help applying for Employment and Support Allowance or Personal Independence Payment, you can use SEAP’s benefit support app. This helps you prepare by testing any application form answers you have drafted to estimate how many points you might score.

Other sources of support

You can also contact the following for further welfare benefits information: