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These factsheets are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of research and updating it would make a big difference.

Action for M.E. Trustee report and accounts 2014–2015

People with M.E. deserve better. That has been a message that we, and others, have been pushing for many years. Read our Trustee report and accounts 2014–2015 to find out how we are making a difference to the lives of those affected by M.E. 

What is M.E.? / Make a difference


Fundraising pack

Our fundraising action pack is full of ideas, tips and advice for making your fundraising event a success. Our work wouldn't be possible without the support of our fundraisers, and we've made sure to include everything you need to know in one easy resource. Also included is a sponsorship form and a poster template for you to customise.

Make a difference


Our statement of strategic intent 2013-2016

This Statement of strategic intent sets out a bold and ambitious agenda for change and reflects our willingness to engage with local and national challenges and make a difference to the lives of people affected by M.E. 

What is M.E.? / Make a difference


Close to collapse

M.E. is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from our 2015 survey, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

Living with M.E. / What is M.E.? / Employers & teachers / Health & care professionals / Make a difference / Research


M.E. Time to deliver

Myalgic Encephalomyelitis (M.E.), sometimes diagnosed as Chronic Fatigue Syndrome (CFS) is a long-term (chronic) fluctuating illness that causes symptoms affecting many body systems. Between December 2013 and February 2014, 2,018 people with M.E./CFS took part in a survey run by Action for M.E., the UK’s leading charity for people affected by M.E./CFS. This report presents key initial findings.

Living with M.E. / Research / Employers & teachers / Health & care professionals / Make a difference


M.E. time to deliver in Scotland

This report presents key initial findings from the 197 people with M.E. in Scotland (out of 2,081 total UK respondents) who took part in Action for M.E.’s 2014 health, welfare, employment and education survey. It was launched at our Scottish Parliament event during M.E. Awareness Week in May 2014.

Living with M.E. / Make a difference


“My life stopped...”

This report focuses on the experiences of 298 people identifying themselves as severely affected (out of 2,081 total respondents with M.E.) who took part in Action for M.E.’s 2014 health, welfare, employment and education survey.

Living with M.E. / What is M.E.? / Make a difference


Campaign toolkit

This toolkit offers ideas and tips for a selection of campaigning and lobbying activities. Direct contact from constituents is the best way to achieve impact but we understand that many people with M.E. are too unwell to take part in high energy activities, so this guide focuses on low-energy tactics which can be just as worthwhile.

Living with M.E. / Make a difference


Campaign toolkit for Scotland

Working with people with M.E., we have developed this toolkit with ideas and templates that can support individuals and groups to campaign in Scotland. The idea came out of discussions at Action for M.E.’s open meetings in Glasgow and Lockerbie in October 2014. Developing the toolkit was one of six key activities taken forward from the meetings as part of our Hear me, influence M.E. project, funded by a Big Lottery, Awards for All Scotland grant.

Living with M.E. / Make a difference


Digital storytelling toolkit

Our 2014 Digital Storytelling project, led by independent professional storytelling consultant Michael Williams, resulted in a number of films produced by people with M.E. in Scotland, telling the story of their experience of the condition. Resulting from this project, this toolkit guides you through the process of making your own digital film, outlining what equipment you need, how best to use it and provides some top tips on film-making.

Living with M.E. / Make a difference


M.E. matters now: Scotland manifesto 2016

Our manifesto asks MPSs to help dismantle the barriers faced by the 20,000 people with M.E. in Scotland. Please ask yours to pledge their support.

Living with M.E. / Make a difference


Template letter to MPs: drop-in session 11 May 2016

Our template letter enables you to easily write to your MP inviting them to the All-Party Parliamentary Group on M.E.'s awareness-raising drop-in session for MPs on Wednesday 11 May. Lunch will be provided, and MPs can pick up a new M.E. information pack with key facts and details of how they can support constituents affected by M.E.

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​M.E. matters now: Wales manifesto 2016

Our manifesto asks Welsh Assembly Members to help dismantle the barriers faced by the 12,000 people with M.E. in Wales.. Please ask yours to pledge their support.

Living with M.E. / Make a difference


​M.E. matters now: Northern Ireland manifesto 2016

Our manifesto asks MLAs to help dismantle the barriers faced by the 7,000 people with M.E. in Northern Ireland. Please ask yours to pledge their support.

Living with M.E. / Make a difference


Supporting your constituent with M.E.

This information resource was developed by the All Party Parliamentary Group on M.E. in May 2016, and is intended to help MPs better support people with M.E.

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Don't ignore M.E. poster

Download and print our new 'Don't ignore M.E.' awareness-raising poster. Don't have a printer? Contact us to order paper copies.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers / Make a difference


Don't ignore M.E. leaflet

Download and print our new 'Don't ignore M.E.' awareness-raising leaflet. Don't have a printer? Contact us to order paper copies. 

Make a difference / What is M.E.? / Living with M.E. / Employers & teachers / Health & care professionals


Chair of Board of Trustees recruitment pack

Action for M.E. is inviting applications for Chair of our Board of Trustees to succeed Alan Cook CBE. The deadline for applications is 16 May 2016.

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Your legacy of hope

At Action for M.E., our vision is simple: we want to overcome M.E. – whether through prevention, more effective treatments or ultimately, by finding a cure for this little-understood illness.

One way you can help us achieve this dream is by leaving a gift to Action for M.E. in your will – however large or small.

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Fundraising sponsorship form

Sponsored fundraising activities and events can be a great way to encourage giving from friends and family. They can also offer a chance to highlight the reality of living with M.E. Please download our sponsorship form to use for your event.

Make a difference


Pay in your fundraising money form

You can use this form to send us the donations you have raised through your fundraising event. Whatever you raise, the sooner we get it, the sooner we can use it to help support people affected by M.E. Action for M.E. cannot achieve all that it does without the support of wonderful fundraisers like you. Thank you!

Make a difference


Fundraising materials order form

Action for M.E. branded fundraising materials are available free for anybody choosing to fundraise for us. Please use this form to request materials for your event. Thank you for your invaluable support.

Make a difference


March 2016 APPG meeting notes

Notes from the 17 March 2016 meeting of the All Party Parliamentary Group on M.E.

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Fundraising poster template

With all the time and effort you’re putting into fundraising, make sure people know about it! You can download our poster template to promote your event. 

Make a difference


July 2015 APPG meeting minutes

Notes from the 1 July meeting of the All Party Parliamentary Group on M.E.

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