Along with charities, groups and individuals across the world, Action for M.E. put plans in place to raise awareness of M.E. throughout May, including M.E. Awareness Week (Sunday 8 to Saturday 14 May) and M.E. Awareness Day (Thursday 12 May) in 2016.
While we work to increase understanding of M.E. throughout the year, M.E. Awareness Month offers an opportunity to really highlight the impact of the condition in the press and among professionals and the general public.
For 2016, we emphasised the isolation experienced by so many people with M.E. and let people know how they could take steps to tackle this.
“Lack of understanding is very isolating for me,” said Samantha, posting on our Facebook page. “It’s just too tiring to fully explain everything and, in fairness to other people, M.E. is difficult to get your head round when you’ve got it, never mind when you haven’t.”
Lisa added that she finds it “extremely difficult that old friends can’t be bothered with me, because being chronically ill is boring after a while. Newer friends are fine for up to a year, then they drop me like a hot stone because having a sick friend isn’t interesting any more.”
We took action so that people with M.E. felt less isolated. During May 2016, we: