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M.E. Awareness Week 2018

M.E. Awareness Week 2018 will run from Monday 7 to Sunday 13 May and provides a chance for charities and people affected by M.E. to raise awareness and understanding of M.E.

We will be sharing the stories and experiences of people with M.E. online and in the press, raising the profile of the illness and making its impact more visible.

The week includes M.E. Awareness Day, which takes place on Saturday 12 May.

We will be updating this page with information on what we’ll be doing to raise awareness of M.E. and how you can get involved on the run up to May, so watch this space.

If you’re planning on holding an awareness-raising event, please get in touch and we can help you promote it.

You can also help between now and May by:


#ThisisME

We know that having M.E. can be a lonely experience that can make it hard to get your voice heard. M.E. can affect different people in different ways and one person’s experience of the illness can be vastly different from someone else’s.

That’s why we think it’s so important that you have a chance to share your experience of living with M.E.

Action for M.E.’s #ThisisME campaign gives you the chance to show the world what M.E. looks like for you.

Getting involved is easy

* On an A4 piece of paper or card, use a thick black pen to describe – in one sentence – how M.E. affects you. Don’t make it too long or it’ll be hard for people to read.

* Take a selfie, or get someone else to take a photo, of you holding your message.

* Upload your photo to Facebook or Twitter with the hashtag #ThisisME – and don’t forget to tag @actionforme so we can share it.

If you’d rather not share your own picture but still want to support our campaign, you can follow us on Facebook and Twitter and share our posts, pictures and tweets. The more peop

Millions Missing protest at the United Nations 

Action for M.E. is supporting the Millions Missing campaign with our Millions Missing event in Geneva on Saturday 12 May – and you can get involved at home, online or in person.

The protest is taking place outside the United Nations because we want the World Health Organisation and its Member States - including the UK - to recognise M.E. as a “serious, chronic, complex, and multisystem disease that frequently and dramatically limits the activities of affected patients” (Institute of Medicine, 2015) and adopt measures to provide a global and co-ordinated public health response to M.E.

You can get involved by:

  • supporting us on social media by sharing our films and images during and after from the event
  • attending on the day if you live in or near Geneva and are well enough to do this; everyone is welcome.

We have prepared a simple guide to getting involved that we hope you will find useful.

Thank you to everyone who sent in shoes for us to use in our demonstration!

Millions Missing is a day of global action, led by US-based advocacy group #MEAction, that calls for health equality for everyone with M.E.