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M.E. Awareness Week 2018

M.E. Awareness Week 2018 will run from Monday 7 to Sunday 13 May and provides a chance for charities and people affected by M.E. to raise awareness and understanding of M.E.

We will be sharing the stories and experiences of people with M.E. online and in the press, raising the profile of the illness and making its impact more visible.

The week includes M.E. Awareness Day, which takes place on Saturday 12 May.

We will be updating this page with information on what we’ll be doing to raise awareness of M.E. and how you can get involved on the run up to May, so watch this space.

If you’re planning on holding an awareness-raising event, please get in touch and we can help you promote it.

You can also help between now and May by:


Action for M.E.’s 2018 campaign, This is M.E., focuses on the unique impact of M.E. We want to show that M.E. is different for everyone – and that everyone with M.E. matters, whatever their experience. We are doing this by:

  • sharing your stories and pictures online, in the press and at some special events
  • highlighting these to the people who make decisions about your health, social care and other support services, asking them to work with us to improve these.

We'll have more information on how you can get involved soon - watch this space!

Millions Missing protest at the United Nations 

Action for M.E. is supporting the Millions Missing campaign with our Millions Missing event in Geneva on Saturday 12 May – and you can get involved at home, online or in person.

The protest is taking place outside the United Nations because we want the World Health Organisation and its Member States - including the UK - to recognise M.E. as a “serious, chronic, complex, and multisystem disease that frequently and dramatically limits the activities of affected patients” (Institute of Medicine, 2015) and adopt measures to provide a global and co-ordinated public health response to M.E.

You can get involved by:

  • sending us shoes that we will display at the event, representing the lives not being lived as a result of M.E., whether you live with the condition yourself or care for someone who does; you can see the powerful visual impact of this at previous Millions Missing events
  • telling us about the impact M.E. has on you or your loved one
  • supporting us on social media by sharing our films and images during and after from the event
  • attending on the day if you live in or near Geneva and are well enough to do this; everyone is welcome.

We have prepared a simple guide to getting involved that we hope you will find useful.

Millions Missing is a day of global action, led by US-based advocacy group #MEAction, that calls for health equality for everyone with M.E.