June 27, 2017
Action for M.E. will be calling for a review of the National Institute for Health and Care Excellence (NICE) clinical guideline on M.E.
NICE has announced it will be holding a consultation on whether the guidelines on CG53 Chronic fatigue syndrome/myalgic encephalomyelitis (encephalopathy): diagnosis and management should be reviewed from 10 to 21 July. As a registered stakeholder on the guideline, Action for M.E. will be responding to this initial consultation stating that the guideline should be reviewed, based on patient experience and the need to consider up-to-date evidence on appropriate symptom management approaches.
While individuals cannot become registered stakeholders, Action for M.E. will ensure that we share the views of people M.E. as part of our response to this consultation. We will not know until 10 July what the precise scope of the consultation is – we'll post more information when we have it.