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​International M.E./CFS family impact study

January 26, 2021

The opportunity to take part in an international research study looking at the impact of M.E./CFS on quality of life of patients and their family members is open until 31st March 2021.

Led by Dr Nina Muirhead with researchers from Cardiff University, this is a short and simple online survey designed to be accessible to people aged 18+, including those severely affected by M.E.

There are two questionnaires in the survey, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. People with M.E./CFS piloting the survey found each questionnaire only took about 5 minutes to complete.

  • If you are accessing the survey for the first time please use this link

  • If you have started the study but lost the link to return please e-mail MEFROM16study@cardiff.ac.uk to be given your unique access code (please note this may take a few days).

  • If you have already participated thank you for your participation. Please do not complete the survey more than once.

The study team have reached their initial goal of 500 fully completed surveys. With your help they hope to reach a new target of 1000 complete sets of data. The greater the reach of this survey the more we can improve international understanding of how M.E./CFS impacts patients and their family members.