November 30, 2016
A new website for the M.E./CFS Epidemiology and Genomics Alliance (MEGA) is now live, with lots of information about this potentially game-changing research project and the scientists and charities involved in it, including Action for M.E.
The MEGA website also sets out draft terms of reference for the Patient Advisory Group, and invites applications to join the group from people with M.E., their carers, and others with an interest in M.E.
UPDATE THU 1 DEC: The MEGA team has been contacted by a number of people asking if it’s possible to extend the deadline for applications to join the Patient Advisory Group. Applications must now be received by 9am 13 December 2016.
Action for M.E. is working with the MEGA team because we believe there is a desperate need to better understand the biology of this illness, currently called M.E. and/or CFS in the UK, and the subsets that exist within it. If funding is successfully applied for, this big data study will be first of its kind in this illness field, using edge technology to analyse samples from 12,000 people to investigate the biology of M.E. Read more about why we are supporting MEGA.