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​Paediatric M.E. research study: alternative funding

January 11, 2018

A paediatric M.E. research study that Action for M.E. was supporting has found alternative funding, allowing us to use the money to support children and families with M.E. in other ways.

Last year, Action for M.E. announced that it was funding a severe paediatric M.E. surveillance study at the University of Bristol. Led by Prof Esther Crawley, the 13-month study aims to measure the incidence, demographic and clinical features of severe paediatric M.E. in the UK. The £6,000 with which Action for M.E. funded this study was contributed by a private corporate donor with a specific interest in seeing the alleviation of childhood suffering. This sum was match-funded by University of Bristol.

Since the announcement, the research team has been establishing the necessary ethical and other approvals required to enable the study to start. During this time, Prof Crawley has found alternative funding that still allows the study to go ahead and enables Action for M.E. to utilise the funding to instead grow our vital support services for children and young people with M.E. and their families.

For this reason, by mutual agreement with the University of Bristol, Action for M.E. has terminated our contract to fund this study.

Following discussion and agreement with our donor, we will now use their generous £6,000 gift to ensure our expert Children’s Services team can reach even more children and families living with M.E.