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​What support is available for carers in the UK?

June 11, 2019

The theme of Carers Week 2019 is ‘Getting Carers Connected.’ We’ve put together some information on the different types of support that you are entitled to as a carer.

Have you had a Carer’s Assessment?

Preliminary results from our Big Survey on life with M.E./CFS in the UK indicate that over 83% of carers have not received a Carer’s Assessment. This assessment is an opportunity to record the impact caring has on your life and what support or services you need. We've created a poster with information on how you can request a Carer's Assessment.

Emergency card:

As a carer you need to know that if an emergency happens, replacement care will get sorted out speedily and efficiently. Have you joined an emergency card scheme yet? Find out how to.

Financial support:

If you are a carer you may be eligible for financial support. Carer’s Allowance is the main benefit available to carers. If you're unsure about what benefits you may be entitled to why not try Carers Trust's online benefits calculator.

Online forums:

The Carers Trust also offer a range of different forums on their website. These forums can provide you with online support and an opportunity to chat to other carers.


Respite care allows you to take a break from caring, while the person you care for is looked after by another person. This enables you to take time out to look after yourself.

Mentor M.E.:

Our project Mentor M.E. is growing mutual peer-support in Scotland. This project will match you with a mentor who can offer support and a listening ear, someone who can also share their experiences and insights into caring for someone with M.E./CFS.


Jointly is a website and online app provided by Carers UK. Its aim is to make caring for someone a little easier, less stressful and a lot more organised by making communication and coordination between those who share the care as easy as a text message.

Professional counselling:

A counsellor is a qualified listener who can help you think about your situation, look at your options, & find ways to cope. They can help you find your own solutions & make decisions about your life. You can read more about how you can access this service through Carers Trust's website.