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Fundraiser of the week: runner Melanie

July 03, 2020

Not one run, not two, but 40 - that's the number of runs our fundraiser of the week, Melanie Alflatt, is aiming to complete for the #GNRSoloChallenge Melanie is fundraising for her…
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CEO Sonya Chowdhury on the potential rise of M.E./CFS

July 02, 2020

Our CEO Sonya Chowdhury spoke on BBC Points West today about the potential rise in M.E./CFS following Coronavirus, and the number of people who are experiencing problematic or delayed…
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​Action for M.E. update: extending our support service

June 30, 2020

In April, we launched our new Crisis, Advocacy and Support Service for people with M.E. of all ages, supporting you to make informed decisions, secure essential practical local assistance,…
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Fundraiser of the week: cream teas by Clare

June 26, 2020

What a week it's been, with the amazing launch of DecodeME, the M.E./CFS DNA study that aims to help us understand the disease and ultimately find treatments.As we co-lead this research,…
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"We can make DecodeME a success by working together."

June 25, 2020

Sonya Chowdhury, our Chief Executive, reflects on the years of dedication and collaboration by so many, that have led to this week's launch of
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Fundraiser of the week: 10-year-old Sonny

June 19, 2020

Sonny is 10 years old, and is cycling 100 miles this month to raise money for Action for M.E. "I have chosen to raise money for Action for M.E. because my Mummy has had M.E. for 26…
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Free online self-advocacy workshop, Wed 15 July

June 18, 2020

Do you live in Bath and North East Somerset? Do you have M.E./CFS, or care for someone who does? Would you like to improve your self-advocacy skills to ensure your voice is heard and…
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EU parliament calls for more M.E. research

June 18, 2020

The European Parliament has passed a motion with an overwhelming majority calling for more funds to research M.E. In a resolution adopted yesterday, with 676 votes in favour,…
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Even though May is over, forget M.E. not

June 02, 2020

Anyone who has M.E. will know the illness isn’t just there for an awareness month, week or day, and we support people with M.E. to get their stories out there throughout the year.We…
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Huge thank you to our amazing volunteers and Trustees

June 01, 2020

From writing articles for InterAction to raising money through fundraising events, our fabulous volunteers are crucial in helping us to support thousands of people living with M.E.…
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M.E. Awareness Month: sharing stories with millions

May 29, 2020

To everyone who took the time and energy to share their story with us this M.E. Awareness Month, allowing us to bring it to a wider audience on our social media channels, in newspapers,…
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Making caring visible: sharing carer stories

May 28, 2020

We know from our Big Survey last year that most carers of people with M.E. are family members or close friends. A recent survey by Carers UK found that 70% of unpaid carers are providing…
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Local M.E. support groups: holding meetings online

May 26, 2020

Has your local M.E. support group been trying to move meetings online? Simon, who appears in our latest short film about living with M.E. and lockdown, has shared some information and…
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Fundraiser of the week: Nat and her amazing new do

May 22, 2020

This week, we say a huge thank you to Nat who took on her own 2.6 Challenge to raise money for Action for M.E. Despite having no hairdressing experience and going at this challenge…
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Avril: learning self management from people with M.E.

May 21, 2020

Avril, our Project Officer in Scotland, shares her thoughts on self-management in a new blog for Health and Social Care Alliance Scotland. She says:"Normally I work on the Mentor M.E.…
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Experts by experience: Daisy, Naomi and Simon

May 18, 2020

Living with M.E. can often force people to become experts at self-care, careful planning, energy-management, learning to say no, living with uncertainty, coping with isolation… the…
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CEO comment on early intervention study for CFS

May 18, 2020

A paper has been published, reporting on an unsuccessful feasibility study of early intervention to prevent CFS in adults.It concludes: "A randomised controlled trial to test an early…
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Sue's M.E. story: "It was like losing my identity"

May 13, 2020

Sue Hardy was working as a nurse when she began struggling with her health. After gallbladder surgery that she believes "was the final nail in the coffin." Sue was diagnosed with M.E."There…
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Celebrating steps this M.E. Awareness Day

May 12, 2020

Today, M.E. Awareness Day, marks the end of this year’s Walk with M.E. challenge. We want to say an enormous thank you to all our Walk with M.E. fundraisers for raising awareness, walking…
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11 to 17 May is M.E. Awareness Week

May 11, 2020

This week is M.E. Awareness Week.We are sharing stories of people with M.E. each day, like this one from a supporter in the North West:“This is a serious and long-term illness that…
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Countess of Mar retires: share your message of thanks

May 04, 2020

Action for M.E. would like to extend our sincere and grateful thanks to the Countess of Mar, who has announced her retirement from the House of Lords following almost 45 years of service.…
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Fundraisers of the week: our eggsellent 2.6 Challenges

May 01, 2020

This week, we have three amazing fundraisers of the week: our 2.6 Challengers.Like so many charities, we rely on our brilliant supporters taking part in fundraising events to support…
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This M.E. Awareness Month, your story matters

April 30, 2020

M.E. Awareness Month is almost upon us, with M.E. Awareness Day on Tuesday 12 May - and it's going to be an M.E. Awareness Month quite unlike any other.While the world has changed in…
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Highlighting M.E. in two parliamentary inquiries

April 30, 2020

Action for M.E. has responded to two important House of Commons inquiries focusing on the impact Covid-19 and the lockdown has had on people with M.E. Over the past few months we…
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Curry with M.E. total so far: an amazing £10,585

April 28, 2020

We would like to say a huge thank you to everyone who has supported our CEO Sonya Chowdhury's 2.6 Challenge. Her take on this UK-wide campaign is Curry for M.E., walking 2.6 miles to…
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Sonya's 2.6 Challenge: Curry for M.E.

April 23, 2020

Like so many other charities, Action for M.E. relies on our brilliant fundraisers taking part in fundraising events to support our vital work.The cancellation of these events due to…
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Tell UK Gov your experience of COVID-19 support

April 16, 2020

Can you share your experience to help the UK Government understand the impact of the lockdown and Coronavirus situation on people with M.E. and other long-term conditions? We are asking…
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UPDATE Priority shopping: "extremely vulnerable" list

April 09, 2020

Following the steps taken by Action for M.E. and other UK charities over the last few weeks, representatives from various supermarkets have responded detailing the steps they are taking…
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Fundraiser of the week: birthday girl Jo

March 27, 2020

Jo Bradley who was diagnosed with M.E. in 2014 while working as a Retail Manager. She told us: “I wanted to raise money for Action for M.E. because of the support you’ve provided me…
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Action on urgent need for priority shopping

March 27, 2020

Action for M.E. has joined with other others to highlight the immediate challenge faced by people with M.E. in accessing food and essential supplies, and ask for immediate action. …
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Coronavirus Bill and Care Act concerns: tell your MP

March 23, 2020

Yesterday, Disability Rights UK shared its serious concerns about the implications of the Coronavirus Bill on human rights, particularly for disabled people and those with long-term…
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APPG on M.E. update: biomedical research meeting

March 17, 2020

The All-Party Parliamentary Group (APPG) on M.E. held its first meeting on Tuesday 3 March, where biomedical research was discussed.Twenty MPs attended or sent staff to hear about the…
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Exciting new project to set M.E. research priorities

March 10, 2020

A new project, supported by three Government-backed research funders, has been launched to help ensure that the M.E. research priorities that matter most to the people affected by the…
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Fundraiser of the week: Hazel Wilcox and team

February 28, 2020

This week’s fundraisers of the week are Hazel Wilcox and her team. Hazel, whose sister has M.E., is taking part in Walk with M.E. with her team in order to support Action for M.E. and…
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Fundraiser of the week: Belinda and her handmade cards

February 21, 2020

Our fundraiser of the week is Belinda, who is donating money from sales of her handmade greeting cards.Belinda was diagnosed with M.E. and Fibromyalgia four years ago. She says:"In…
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Will your MP attend the APPG for M.E. in March?

February 20, 2020

The next meeting of the All Party Parliamentary Group for M.E. is taking place on Tuesday 3 March where the focus will be on biomedical research. You can still invite your MP to…
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Free research workshop in Bristol: all welcome

February 20, 2020

What big research questions do people with M.E., their carers and clinicians want answered?You are invited to a free workshop on Tuesday 10 March to start a conversation about addressing…
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Updated resource: pacing for people with M.E.

February 18, 2020

Fully revised for 2020, our comprehensive pacing guide is based on the insight and experience of people with M.E.Pacing is a an approach that can help people with M.E. take control…
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Scottish Health Council survey of M.E. in Scotland

February 14, 2020

The Scottish Health Council (SHC) has launched a survey to gather the views and lived experience of people with M.E./CFS in Scotland. The survey was commissioned in response to questions…
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Fundraiser of the week: beer can man Nick West

February 14, 2020

We’re saying a hearty cheers and thank “brew” very much to today’s fundraiser of the week, beer can fan Nick West.Last year, Nick made it into the news when he donated part of his…
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Meet M.E. drop-in in Fife on 12 March: all welcome

February 12, 2020

We asked Zara, who attended one of our Meet M.E. drop-in events, what she loved about the session. She said:"Meeting other people with M.E... Knowing that people are interested in supporting…
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International #WomenInScience Day: CMRC speakers

February 11, 2020

“It’s shocking that so many people are living with this debilitating illness and there is so little attention on it," says Dr Sadie Whittaker. "I feel strongly that increasing recognition…
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Fundraiser of the week: Sarah and her team mates

February 07, 2020

"Together as a team we hope to raise awareness and funds for Action for M.E. so that they can make a difference to the lives of those with this invisible and greatly misunderstood…
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Neurological care and support in Scotland update

February 03, 2020

Last month the Scottish Government launched the Neurological care and support: Framework for action 2020-2025. This framework sets out their vision for driving improvement in the care…
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Team Action for M.E. seeks Bath Half runners

January 29, 2020

Last year, Daniel and our Bath Half team raised more than £2,522 to help us reach even more people with M.E. Daniel told us:“I was watching telly and came across a person with M.E.…
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Michael: "Mentor M.E. meant I was less isolated."

January 28, 2020

Michael has M.E. and lives in Stirling, Scotland.“Before, I found it difficult to accept my illness. Other people didn’t believe I was ill, as I looked OK to them. This made me not…
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Fundraiser of the week: Sarah Middleton and friends

January 24, 2020

Our fundraiser of the week is Sarah and her intrepid friends Catherine, Fran and Liz, undertaking the Yorkshire Three Peaks Challenge in April. "I’ve grown up with the Yorkshire Dales…
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Update on M.E. in WHO's latest disease classification

January 20, 2020

After years of hard work by M.E. advocate Suzy Chapman, the World Health Organisation (WHO) has doubled back on plans which would have made it even harder for people with M.E./CFS to…
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Fundraiser of the week: Genevieve Miles

January 17, 2020

“When I was 14 I became ill and never really got better," recalls our fundraiser of the week, Genevieve Miles. "Turns out I have M.E. It was boring, frustrating and so sad, I definitely…
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Holly: "Walk with M.E. seemed like the perfect fit"

January 14, 2020

Holly has been unable to leave her house since 2012. She told us:“M.E. has dramatically altered my life and the lives of those around me, especially my parents, who had to also become…
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Say yes to biomedical research: show your support

January 03, 2020

More than 1,500 people with M.E., carers, family members and friends have already shown their support for a potentially game-changing genetic study - but we need thousands more.You…
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Information and support over Christmas and New Year

December 19, 2019

Action for M.E.'s Information and Support Service is now closed for the Christmas break, earlier than expected due to staff sickness. It will reopen on Monday 6 January 2020. We will…
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M.E./CFS Biomedical Partnership: share your ideas

December 19, 2019

In November, the newly established M.E./CFS Biomedical Partnership met with Medical Research Council and the National Institute for Health Research to discuss an application for funding…
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General election: next steps

December 13, 2019

After the results of the general election, you may have some questions about how the result will affect you and your family. As part of our work, we will be looking at the promises…
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Because of you, our Big Give total tops £140,300

December 11, 2019

We are thrilled to report that, with your support, our Big Give Christmas Challenge raised an incredible £140,313. From all of us here at Action for M.E., and on behalf of those…
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The Big Give Christmas Challenge 2019 is here!

December 03, 2019

The Big Give Christmas Challenge 2019 is here! Every donation we receive through the Big Give website between now and 10 December will be doubled whilst our match pot lasts.*Update…
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The Big Give Christmas Challenge 2019 - FAQ

December 02, 2019

The Big Give Christmas Challenge 2019 starts at noon on the 3 December, and will run until noon on Tuesday the 10 December. Throughout this week any donation made to us through the…
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Parliamentary engagement: taking a stand for M.E.

November 29, 2019

This election we have written to 1,500 General Election candidates asking them to stand up for M.E. if they are elected.In our letters, we have shared information about the condition…
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ME/CFS Biomedical Partnership PPI Steering Group Update

November 28, 2019

SummaryOn Monday, the ME/CFS Biomedical Partnership met with Medical Research Council (MRC) and the National Institute for Health Research (NIHR) to discuss an application for funding…
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Only one week to go until the Big Give!

November 26, 2019

With only one week to go until the Big Give Christmas Challenge 2019 we wanted to share the Big Give official video, featuring Alexander Armstrong: The Big Give Christmas…
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No Isolation - AV1 Robot steering group

November 25, 2019

On Friday we attended a steering group for No Isolation government funded AV1 robot project. No isolation are reducing loneliness and isolation through ‘warm’ technology. Their AV1…
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M.E. and school: how can I help? Awareness raising session.

November 22, 2019

Yesterday over 60 education professionals who specialise in a variety of areas such as safeguarding, child protection, teaching and managing students with complex conditions attended…
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Fundraiser of the week - Elinor's 21st Birthday

November 22, 2019

We’d like to say happy birthday to our fundraiser of the week Elinor who is turning 21 today! She has generously asked her friends and family to donate to her Facebook birthday fundraiser…
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​GP home visits under threat

November 20, 2019

Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by Kent LMC to stop home visits by GPs.…
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Fundraisers of the week: Andrew and Rob

November 15, 2019

We’d like to say a huge thank you to our fundraisers of the week, father and son duo, Andrew and Rob who have just completed the Men’s 10K Edinburgh 2019.When explaining their reasons…
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Fundraiser of the week - David's half marathon

November 08, 2019

Our fundraiser of the week is David who has recently taken part in the Hever Castle Half Marathon. When speaking about his reasons for supporting our charity, David tells us : “I'm…
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ME/CFS Biomedical Partnership to apply for funding

November 07, 2019

Led by biomedical researchers and patient representatives, including Action for M.E. Chief Executive Sonya Chowdhury, a newly established group called the ME/CFS Biomedical Partnership…
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​Edinburgh ME Self Help Group's AGM and open meeting

November 07, 2019

Open meeting - ‘ Sharing experiences of living (a better life) with M.E.’ On 26 October, we were invited to attend the Edinburgh ME Self Help Group’s (EDMESH) Annual General Meeting…
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December general election - key dates

November 07, 2019

Yesterday signified the first day of political purdah, meaning the time between when a UK election is announced and when that election is held. Over the next few weeks there will be…
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Meet M.E. - our second drop-in event in Inverness

November 06, 2019

On 26 October, we . co-hosted our second drop-in event for people with M.E. in Inverness. This was in partnership with M.E. Highlands and Islands Network and The Oxygen Works. Based…
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House of Commons Petitions Committee report on fireworks

November 05, 2019

Events such as bonfire night aren’t events that are celebrated by everyone. For people with conditions such as M.E./CFS it can be a very distressing and difficult time. Earlier this…
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Fundraiser of the week - Amber

November 01, 2019

We'd like to say a huge thank you to our fundraiser of the week Amber. Today she has cut off 16 inches of her hair (which will be donated to The Little Princess Trust) in order to raise…
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​InterAction needs you: Christmas customs

October 30, 2019

“If it falls on a day the salon is open, I have my hair done on Christmas Eve. I am always the last customer of the day, just before they have a little staff party. The atmosphere is…
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Temporary office closure on 31 October

October 30, 2019

Our office and phone lines will not be open tomorrow due to staff training. Normal office hours will resume on Friday 1 November.If you need information and support whilst we are away,…
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Watch our AGM & conference 2019 on YouTube

October 28, 2019

Recorded videos from our AGM and conference 'Are you listening to M.E.? Voices from Action for M.E.'s Big Survey' are now available to watch on YouTube. We have uploaded recordings…
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Fundraisers of the week - Paige and Hamish

October 25, 2019

We'd like to thank our fundraisers of the week Paige and Hamish for raising awareness of M.E./CFS and supporting our charity.When speaking about their fundraiser Paige told us:"Hamish…
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Our submission to the NICE call for evidence

October 24, 2019

Last month, the National Guideline Centre opened a call for evidence for studies into M.E./CFS. Commissioned by the National Institute for Clinical Excellence (NICE), this evidence…
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Attending the RCGP annual conference as part of Forward-ME

October 24, 2019

This week is the Royal College of GPs annual conference. Along with other charity representatives, our Policy Officer Sam Bromiley will host a Forward ME information stand, with the…
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​M.E. research: HRA reviews ethical concerns

October 22, 2019

The Health Research Authority (HRA) has published a report on its investigation into concerns relating to 11 M.E./CFS research papers. With a remit from the UK government to “protect…
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Early-bird registration now open: CMRC 2020

October 21, 2019

Early bird tickets are now available for the 2020 UK CFS/M.E. Research Collaborative conference, which takes place in Bristol on Tuesday 10 and Wednesday 11 March.These tickets are…
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Fundraiser of the week - Sal

October 18, 2019

Our Fundraiser of the week Sal who is currently climbing Mount Kilimanjaro in Tanzania - Africa's highest freestanding dormant volcano. She is completing this over the course of eight…
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How to attend our AGM and Conference via Webinar

October 14, 2019

As promised, we will be live streaming our AGM and conference, which is taking place tomorrow. There will be two separate webinars on the day, one in the morning and one in the afternoon.…
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Fundraisers of the week - Team Banana

October 11, 2019

Our fundraisers of the week are Team Banana, a group of eight friends who completed the 26 mile ‘Walk the Test Way’ challenge on Sunday. The group chose to support our charity in honour…
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Watch our AGM and conference live online next week

October 07, 2019

Registration for our annual AGM and conference is now closed. If you are unable to attend in person but would still like to watch – don’t miss out! We will be live streaming the event,…
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Fundraiser of the week - Chelsea

October 04, 2019

We’d like to thank Chelsea, our fundraiser of the week, who has raised an amazing £140 for us at her quiz night last week. We asked Chelsea to share a little bit about herself and her…
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National Poetry Day 2019 - Truth

October 03, 2019

3 October is National poetry day - 2019's theme is Truth. Today, we share a small collection of poetry created by those in our community talking about their every day truth of living…
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​Cochrane review of GET: our concerns

October 03, 2019

Cochrane Reviews, the gold-standard of systematic healthcare research reviews, has published an update of its review of graded exercise therapy (GET) for M.E./CFS. This comes under…
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Fundraiser of the week - Tim takes on Hadrian's Wall

September 27, 2019

We’d like to say a huge thank you to our fundraiser of the week, Tim, who is currently completing Hadrian’s Wall in order to raise funds for and support our charity. When speaking for…
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Bella Magazine - Please Believe ME

September 26, 2019

What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to leave the house, how do you tell your boss or your friends? In…
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Run for us - London Marathon 2020

September 25, 2019

The deadline for applications to take part in the London Marathon 2020 on behalf of our charity close on 25 October – could you be a part of our team?Every year a team of determined…
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Our AGM and conference - what workshops you can attend

September 24, 2019

Action for M.E.'s AGM and conference "Are you listening to M.E.? Voices from Action for M.E.'s Big Survey" will be taking place on Tuesday 15 October at Allen and Overy, London. …
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Fundraiser of the week - Lauren's hook a duck stall

September 20, 2019

Our fundraiser of the week is Lauren. Alongside her family, Lauren raised an amazing £120 for Action for M.E. on her hook a duck stall. We asked Lauren to tell us a little bit more…
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My body is a “mask” covering up my symptoms and pain.

September 19, 2019

Caitlin is 17 and has been living with chronic health conditions including M.E./CFS for the last five years. She has produced a three part photography series which discusses the different…
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Do you need an advocate? Empowering you to have your voice heard

September 17, 2019

If you live in the Midlands or South West our Advocacy Service may be able to help you to access support, and help you understand your rights. Our advocates can explain processes in…
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Fundraiser of the week - Sam's cycle ride

September 13, 2019

Our fundraiser of the week is Sam who will be cycling 90km from London to Brighton. He is raising money for our charity in order to contribute to vital funding towards research in to…
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'How can I help?' - M.E. awareness raising in schools

September 12, 2019

Our team in Scotland delivered their first M.E. awareness raising session in schools yesterday. Visiting a secondary school in Ayrshire, Theresa and Avril spoke with 50 young people…
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I am Caitlin - not my disability

September 11, 2019

Caitlin is 17 and has been living with chronic health conditions including M.E./CFS for the last five years. She has produced a three part photography series which discusses the different…
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Pass on something wonderful - Your legacy of hope

September 10, 2019

This week is Remember a Charity week – a national campaign to encourage people to leave a legacy to charities. Each year almost £3bn is donated to charities through gifts in Wills.…
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Our AGM and conference - meet the panel

September 06, 2019

Action for M.E.'s AGM and conference "Are you listening to M.E.? Voices from Action for M.E.'s Big Survey" will be taking place on Tuesday 15 October at Allen and Overy, London. “If…
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You can't see my illness - that doesn't mean it's not real

September 04, 2019

Caitlin is 17 and has been living with chronic health conditions including M.E./CFS for the last five years. She has produced a three part photography series which discusses the different…
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