December 18, 2018
In October, the House of Commons’ Science and Technology Committee asked the public to inform them on potential areas of scrutiny. The committee expressed an interest to hear suggestions…
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December 17, 2018
Aged 13 - 23 and living with M.E./CFS in Scotland? We want to hear from you! Schools can struggle to get it right for children and young people with M.E. Although M.E. is the biggest…
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December 12, 2018
Action for M.E. have partnered with the ME Highland and Islands Network (ME Highlands) in order to reach more people with M.E. in Scotland. ME Highlands works to highlight the lack…
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December 06, 2018
Action for M.E. offers a free Information and Support Service for young people and adults with M.E., and their carers and family. Our friendly Information and Support team understand…
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December 04, 2018
Minutes from last month's meeting of the Board of the UK CFS/M.E. Collaborative (CMRC) are now available to read on our CMRC page, giving updates on:the CMRC's priority-setting partnership…
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December 04, 2018
The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering Myalgic Encephalomyelitis (M.E.). Recognition, research and…
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November 30, 2018
"The most important feature of Forward M.E. is that we work together for the common good; never was the principle of 'divide and rule' more prevalent than in the word of M.E." said…
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November 26, 2018
The Big Give Christmas Challenge will be starting at noon tomorrow, and will run until midday on Tuesday the 4 December. Throughout this week any donation made to us through the Big…
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November 23, 2018
This week’s fundraiser of the week is everyone who has pledged to donate to us during the Big Give Christmas Challenge that starts at noon next Tuesday.
In particular, we would like…
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November 20, 2018
Action for M.E. are testing out an idea we have for a new project that could potentially help support people with M.E. nationwide.This project would aim to link healthy volunteers with…
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November 20, 2018
From noon today, the office phone-lines will be temporarily down as we undergo essential maintenance to our phone system. These improvements will mean that we are better able to provide…
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November 16, 2018
Action for M.E. would like to say a huge thank you to our fundraisers of the week- the Bowls Cornwall club- for raising £1,200 on behalf of our charity.
Peter Prynne presented a check…
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November 15, 2018
Can you help us?
Action for M.E. are looking for volunteers to help us raise critical funds and awareness to support the 250,000 children, young people and adults living with M.E.…
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November 13, 2018
Action for M.E. welcome the appointment of Dr William Weir to the National Institute for Health and Care Excellence (NICE) guideline development committee. Dr Weir is currently the…
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November 12, 2018
We are pleased to announce that our Welfare Advice and Support Service has re-opened, following a period of temporary closure. Please call our Information and Support line on 0117…
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November 08, 2018
All of us at Action for M.E. would like to say a huge thank you to Peter Wharton, Alistair and Pete Hughs, who formed our small, but amazing 2018 Prudential RideLondon – Surrey 100…
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November 07, 2018
Trigger warning: this post
features content of a sensitive nature regarding suicide. Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for…
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November 05, 2018
It is estimated that as many as a million adults in Scotland are living with a wide range of complex and life-changing neurological conditions. As neurological diseases are so diverse,…
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November 02, 2018
Our fundraiser of the week is Clare Wills, who will be running the London Landmarks Half Marathon in March on behalf of Action for M.E. “My Mum is the inspiration for me running the…
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November 02, 2018
Are you thinking of taking on a sporting challenge next year? Join Action for M.E. for the Great North Run 2019 and have the opportunity to raise funds and awareness for M.E., a life-stealing…
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November 01, 2018
The Mentor M.E. peer support network is a five-year Action for M.E. project, launched in 2016, and funded by the Scottish Government and the Health and Social Care Alliance Scotland…
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October 31, 2018
Earlier this month, we shared an update about our Welfare Advice and Support Service, which was experiencing a very high level of requests for support. In order to ensure that we are…
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October 31, 2018
Action for M.E.’s staff, Trustees and volunteers are delighted to invite you and your family, friends and colleagues to our 2018 AGM and conference.
Where: Allen & Overy LLP, One Bishops…
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October 30, 2018
This Christmas will be the eighth year that we have run our Action for M.E. Christmas Angel project whereby people with M.E. can send Christmas cards to each other via the Action for…
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October 29, 2018
Next year we will launch our new Regional Advocacy Service which will cover the Midlands and South West to ensure that people affected by M.E. are able to secure services, care and…
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October 26, 2018
A huge thank you to our Fundraiser of the week Leigh who will be holding a series of live streams over the next two weeks. His videos will showcase the latest games as well as some…
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October 25, 2018
Our updated comment can be found at the bottom of the article. The final version of the National Institute for Clinical Excellence (NICE)’s scope for its revised guideline on M.E./CFS…
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October 23, 2018
Margaret, Countess of Mar marks ten years of Forward M.E. today, meeting with staff and Trustees from the charities with which she collaborates, including Action for M.E., at the House…
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October 19, 2018
Congratulations to our Fundraiser of the Week, Lizzie Carswell, who has nearly reached her fundraising goal of £1,000!Lizzie plans to run 365 kilometres by November on behalf of her…
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October 16, 2018
The National Institute for Health and Care Excellence (NICE) has published its final scope for its updated guideline on M.E./CFS, along with consultation comments and committee appointments.…
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October 16, 2018
We want you to have your say – we can share the welfare benefit issues that matter to you with your MP. Thanks to the War on Welfare petition, a debate has been secured at the House…
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October 12, 2018
Congratulations to Grant Watling who has been chosen as our fundraiser of the week. Grant has kindly chosen to fundraise for us when he takes on the Nuclear Races in May next year,…
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October 09, 2018
Update: Applications for this have now closed. The Patient Advisory Group (PAG) to the UK CFS/M.E. Research Collaborative (CMRC) is recruiting a number of new adult members, based in…
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October 09, 2018
Our welfare advice and support service is currently
experiencing a very high level of requests for support. In order to ensure that we
are able to provide a good-quality service to…
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October 08, 2018
The Autumn issue of our membership magazine, InterAction, is now available to stream or download in audio format. Just visit our Soundcloud page and click the ‘play’ icon on the article(s)…
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October 05, 2018
On 19 and 20 September, the UK CFS/M.E. Research Collaborative (CMRC) welcomed people living with M.E., scientists, clinicians and industry experts to its fifth annual science conference…
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October 05, 2018
Our fundraiser of the week is our supporter Francis and her sister Liza, who has kindly sent us her beautiful handmade angels for us to sell in our shop. Each angel comes as part…
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October 04, 2018
Dr Gregor Purdie, Medical Advisor, Action for M.E., will join two other clinicians to lead Forward M.E.’s workshop at the RCGP conference in Glasgow today. Chaired by Prof Kamila…
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October 03, 2018
Do you know anyone interested in taking on the world famous London Marathon next April? The results of the ballot for own places is announced this week - if they weren't selected, we'd…
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September 29, 2018
Today marks Action for M.E.’s last match as official sponsors of Notts County FC for the month of September, with their game against Crewe Alexandra.Sonya Chowdhury, our Chief Executive,…
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September 28, 2018
Congratulations to our Fundraiser of the Week, Scarlett Tomes, who will be taking on the Oxford Half Marathon next month. Scarlett is running for her mum, who was diagnosed with M.E.…
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September 27, 2018
Getting out and about when you have M.E. can pose real challenges, especially for those with limited mobility. We’d love to hear your experience, ideas and tips for travel aids and…
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September 26, 2018
This year we had 3 fantastic runners in the British 10K London Run, raising money for our work and awareness of M.E. with their Action for M.E. branded running vests.Together Owen,…
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September 25, 2018
Forward M.E. charities, including Action for M.E., will host an exhibition stand and workshop at next month’s Royal College of General Practitioners (RCGP) conference in Glasgow – please…
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September 21, 2018
Congratulations to Robert Godsell who has been chosen as our Fundraiser of the Week! He is taking on the SimplyHealth Great South Run 2018 for his wife, Lorraine, who was recently diagnosed…
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September 17, 2018
We would like to say an enormous thank you to our two volunteers, Sue and Sue, Notts County FC and to all those who donated to Action for M.E. during our bucket collection at Meadow…
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September 14, 2018
Congratulations to Notts County FC, our Fundraiser of the Week! As part of our one-month sponsorship of the club, generously donated to us by one of our supporters, Notts have kindly…
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September 13, 2018
“Inspiring speakers – liked the discussions – lovely venue and great lunch” are what you can expect from Action for M.E.’s 2018 Annual General Meeting (AGM) and conference, according…
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September 10, 2018
The Scottish Liberal Democrats voted to support a motion on M.E. at their party conference on Saturday, calling for a number of actions, including the removal of graded exercise therapy…
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September 07, 2018
Congratulations to Rob Findlow, who has been chosen as our fundraiser of the week and has raised an incredible £547 in just 8 days! Rob is running the Wigan 10k for his wife, Lorna,…
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September 06, 2018
InterAction 99 is out now and will be landing on the doorsteps of our Supporting Members over the next few days. Audio copies of the article will be available on our Soundcloud in the…
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September 03, 2018
Are you a football fan? Do you or a keen supporter in your family struggle to attend games because of M.E.? As part of Action for M.E.’s September sponsorship of Notts County FC,…
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September 01, 2018
We are thrilled to have been gifted sponsorship of Notts County FC, the world’s oldest football club, for the month of September, by one of our longstanding supporters.The team – known…
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August 31, 2018
Our fundraiser of the week is David Furness. David has chosen to run the Great North Run 2018 for Action for M.E. because of his personal experience with the illness. David said “I…
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August 31, 2018
Due to staff illness, we are sorry to inform you that our Information & Support and Welfare Advice lines will be closed for the remainder of Friday 31 August. Normal hours will resume…
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August 29, 2018
This statement sets out our position on the PACE trial and behavioural treatments for M.E. In the past, Action for M.E.’s strategy was to support all forms of research into M.E.…
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August 28, 2018
Action for M.E. has updated our five-year strategy for 2016 – 2021 to include our promises to children, young people and families living with M.E. Following the launch of our new…
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August 24, 2018
“To function, and live life enjoyably, I have to plan, plan, plan and sometimes say no to things or cancel, to ensure my body will be able to cope with day-to-day life. It is a continuous…
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August 23, 2018
Making M.E. the focus of his Drivetime show today on BBC Radio London, Eddie Nestor MBE will hear from people living with M.E. about the impact of the condition on school, work and…
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August 22, 2018
Would your secondary school benefit from an awareness- raising session? M.E. is the main cause of long-term absence from schools. Yet there is very little awareness and understanding…
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August 22, 2018
This year’s annual UK CFS/M.E. Research Collaborative (CMRC) conference is taking place at the Future Inn, Bristol on Wednesday 19 and Thursday 20 September. This will be the first…
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August 17, 2018
Our fundraiser of the week is Elizabeth Carswell, who is doing a charity run because her sister Sheena has M.E. Elizabeth said: “As a result of this horrible illness, my sister has…
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August 13, 2018
Action for M.E. is saddened to hear of the passing of Professor Norman E. Booth, who passed away last week. Professor Booth, of the University of Oxford, had previously studied mitochondrial…
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August 09, 2018
This week, we celebrate three of our Great North Run fundraisers who have chosen to run on behalf of loved ones who are severely affected or have suffered major relapses. Some have…
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August 08, 2018
August 8 is Severe M.E. Day, an international day of awareness focused on those who are severely affected by M.E. Around one in four people with M.E. are severely affected by the condition.…
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August 01, 2018
The latest update to the electronic health records system used by GPs in England was launched yesterday, listing M.E. as a neurological disorder. Previously it had sat under the headings…
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July 26, 2018
We’ve been gathering your feedback for weeks and now Action for M.E. have responded to the National Institute for Health and Care Excellence’s (NICE) consultation on the draft scope…
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July 20, 2018
Our fundraiser of the week is Devonshire House Preparatory School, whose students held a film night for Action for M.E. on Wednesday 27 July.Students organised two movies to be shown…
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July 13, 2018
Our fundrasier of the week is Peter Wharton, who is taking part in the Ride London Surrey 100 for us because his wife Swee-Fong has been diagnosed with M.E./CFS.Talking about her experiences…
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July 11, 2018
Action for M.E. is pleased to announce that we are in the early stages of launching a new pilot service that will provide direct advocacy to people affected by M.E. in the Midlands…
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July 10, 2018
A test to help recognise M.E./CFS could be closer than ever thanks to a new study led by researchers at the Centre for Infection and Immunity (CII) at Columbia University's Mailman…
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July 09, 2018
If you’re a student or the parent of a student who has M.E. you might want to check out the DSA Claim It! campaign, which offers advice and information about Disabled Students' Allowances…
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July 06, 2018
Our fundraiser of the week is Katie Collins, who is taking part in the Cotswold Way Challenge.Taking place from Saturday 30 June to Sunday 1 July, the challenge involves walking 100km…
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July 03, 2018
Action for M.E. has submitted evidence to the Work and Pensions Committee highlighting the reality of living with M.E.The parliamentary committee, whose role is to scrutinise the work…
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June 29, 2018
Our fundraiser of the week is the Haywoods Group, who are undertaking the Otillo 1000 lakes SwimRun for Action for M.E.Taking place on September 30 in Mecklenburger Seenplatte, Germany,…
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June 27, 2018
The full programme for this year’s UK CFS/M.E. Research Collaborative conference has now been announced.Conference speakers already confirmed include: Prof Cathie Sudlow, UK Biobank…
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June 26, 2018
Following feedback from people affected by M.E., we have amended our survey on the NICE consultation so that you are able to indicate that you are responding as a carer.We are asking…
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June 26, 2018
We have been made aware of a statement and petition online which raises a number of questions and concerns about Action for M.E.We would like to make it very clear that this statement…
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June 22, 2018
Our fundraiser of the week is Adam Chivers, who is running the British 10km race on Sunday, 15 July.Adam, who has raised over £300 so far, is taking part in the event for us because…
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June 22, 2018
The National Institute for Health and Care Excellence (NICE) have released a draft scope for its revised guideline on M.E./CFS, and are asking for applications from people affected…
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June 21, 2018
“At the moment M.E. receives practically no funding in terms of biomedical research…the treatments that are currently available are often more damaging to the person than no treatments…
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June 20, 2018
Yesterday, Prof Vincent Racaniello, Columbia University, sent a letter to The Lancet about the PACE trial, asking the journal to “commission an independent re-analysis of the individual-level…
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June 15, 2018
Our fundraiser of the week is Rob Bold, who is taking part in a skydive to raise money for us because his wife has M.E.Rob said: “I recently turned 40 and for my present off the wife…
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June 14, 2018
Our supporter Pippa Stacey has released a compilation book featuring multiple contributors sharing their experiences of varying severities of M.E.The book, titled Dear Chronic Illness,…
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June 13, 2018
Our Membership magazine, InterAction, is now available to stream or download in audio format. Just visit our Soundcloud page and click the ‘play’ icon on the article(s) you want to…
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June 08, 2018
Our fundraiser of the week is Leanne Towart, who will take on the Great North Run challenge in aid of her friend Nicola, who lives with severe M.E.Leanne said: “People with severe M.E.…
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June 07, 2018
A debate on M.E. treatment and research will be held in Westminster Hall on 21 June and we need your MP to attend!The debate comes after Carol Monaghan MP, Member of the UK Parliament…
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June 05, 2018
Audio recordings of a special event at the Scottish Parliament hosted by Gail Ross MSP and supported by Action for M.E. are now available to listen to online.The event recording has…
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June 04, 2018
Action for M.E. is delighted to announce its latest PhD studentship in biomedical M.E. research.Following our rigorous Research Funding Assessment Process, our Board of Trustees has…
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June 01, 2018
Our fundraiser of the week is Claire Green, whose team from Thomas and Adamson ran the Edinburgh Relay Marathon on May 27 to raise an amazing £1,346 for us.Claire, who was unable to…
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June 01, 2018
Action for M.E. is pleased to announce that our Welfare Advice and Support Service will be open again by mid to late June. We have recruited a new welfare rights advisor and aim to…
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May 25, 2018
Action for M.E. will be representing people affected by M.E. at a workshop held by the National Institute of Health and Care Excellence (NICE) today to inform their development of an updated…
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May 25, 2018
We frequently hear from people with M.E. about the problems claiming Personal Independence Payment (PIP), such as the assessment process not taking fluctuating symptoms into account,…
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May 24, 2018
Action for M.E. and the Scottish Government’s Chief Scientist’s Office are delighted to announce our jointly funded PhD studentship in biomedical M.E. research.Prof Chris Ponting, University…
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May 23, 2018
The need for accelerated biomedical research, and training and education for health professionals has been highlighted at the first-ever World Health Assembly side event focused on…
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May 21, 2018
If you are a young person or young adult, we want to hear more about your experiences being assessed for, or receiving, SEND support in school for your M.E. You can also fill out our…
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May 18, 2018
Our fundraiser of the week is Leanne Toward, who is taking on the Great North Run for us this September.Leanne said: "My lifelong friend has suffered from severe M.E. for over 10 years.…
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May 16, 2018
Our new fundraising event Walk with M.E. has exceeded all our expectation to raise over £3,300!Walk with M.E. is a team sponsored walk, with each team member contributing as many steps…
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May 11, 2018
For this week's fundraiser of the week we'd like to say a big thank you to our Walk with M.E. teams!Libby Seath, Belinda Yorke, Bethany Ollier, Tiggy Snowdon, Kate Lodal, Anna Pratt,…
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May 10, 2018
An Early Day Motion has been tabled in the UK parliament in recognition of M.E. Awareness Week, with a similar motion tabled in the Scottish Parliament too - see below.Early Day Motions…
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Registered in Scotland: SC040452.
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