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Fundraiser of the Week - Lauren Kendrick

December 15, 2017

Our fundraiser of the week is Lauren Kendrick, who took part in the Equinox 24 hour race at Belvoir Castle back in September.Lauren was joined by members of her family and friends,…
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Families affected by M.E. attend Downing Street

December 13, 2017

Five families affected by M.E. attended the 10 Downing Street children's Christmas party this week, accompanied by Mary-Jane Willows, Head of Children's Services at Action for M.E. We…
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InterAction 97 is now out: got your copy?

December 12, 2017

The Christmas 2017 issue of our membership magazine InterAction is out now. It’s packed with the latest M.E.-related news and features, campaigns and research updates, as well as medical…
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​Government sets out disability employment strategy

December 11, 2017

The UK Government has announced a strategy to improve employment for disabled people. Action for M.E. responded to the consultation that informed this strategy, highlighting how some…
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Webinar recording now online

December 11, 2017

A recording and the slides from our latest educational webinar for primary healthcare professionals are now available to view in the Health and Care Professionals section of our website.‘Meeting…
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Fundraiser of the week: Manus Noble

December 08, 2017

Our fundraiser of the week is Manus Noble, a fantastic contemporary guitarist who is putting his considerable skills to great use.We love his Covers for others project, which offers…
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​Updating the NICE guideline: next steps

December 06, 2017

The review of the National Institute of Health and Care Excellence (NICE) guideline for M.E. will pay careful attention to the experiences and views of patients and clinicians, a Director…
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Big Give Christmas Challenge raises over £121,000

December 05, 2017

The Big Give Christmas Challenge has drawn to a close today and thanks to your incredible support we’ve raised an amazing £121,116 including Gift Aid!The support we’ve received from…
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Christmas card competition: send your festive photos

December 05, 2017

We are looking for a fantastic festive photograph to turn into Christmas card to be sold as part of our 2018 Christmas card range. This year, our winner was Christmas Fir by John Wright.Please…
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"I feel like I walk a tightrope with my energy levels"

December 04, 2017

“Action for M.E.'s resources, including their guides about coping with M.E. at work, have been brilliant and really useful” says Hattie, age 27. “I have had a lot of sick days in the…
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Fundraiser of the week - Sean Weller

December 01, 2017

Our fundraiser of the week is Sean Weller, who’s been hosting a gaming livestream today.Sean, who describes himself as a YouTube gamer from England, has kindly decided to donate half…
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"I have lost all friends now"

December 01, 2017

"Fatigue and widespread pain are my worst problems. I'm in a wheelchair, bed-bound for days at a time and in pain 24 hours a day. It means I can't leave the house very often and feel…
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Big Give donations top £100,000

November 30, 2017

Thanks to our brilliant supporters, donations to our Big Give Christmas Challenge have just topped £100,000 - which means our match-funding pot has run out, and donations can no longer…
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"It's hard seeing all your friends living their lives"

November 30, 2017

"I was working for a property developer in London at the time, always the one to stay for one more drink at the end of the night and putting in the hours to try and progress my career"…
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"Action for M.E. has helped me massively"

November 29, 2017

"The worst thing is feeling so helpless, that I can’t find anything to work for Abbi, or help her – and battling with other people and the school, and close family and friends, who…
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#GiveBig for M.E. and see your donation doubled

November 28, 2017

Today marks the start of The Big Give Christmas Challenge 2017, which runs from noon on Tuesday 28 November to noon on Tuesday 5 December. During this time, every donation we receive…
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Your donations doubled for Big Give next week

November 24, 2017

“M.E. is not just tiredness, it is pain, confusion, image changes physically and mentally, we hurt, some may argue more than others. M.E. is a life-changing disability and it slows…
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Fundraiser of the week - Meike Scheller

November 24, 2017

Our fundraiser of the week is Meike Scheller, who raised £54.27 for us during a screening of Unrest at Bath University.Meike organized the screening of Jen Brea’s film and put out collection…
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Autumn Budget 2017: what to expect

November 22, 2017

Philip Hammond, Chancellor of the Exchequer, will deliver the UK Budget today and outline planned changes to spending, some of which are likely to affect people with M.E.One area where…
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Webinar for healthcare professionals next Thursday

November 21, 2017

There's just over a week to go until our new webinar aimed at educating healthcare professionals about M.E. launches online.Meeting the needs of people with M.E./CFS – essential facts…
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Fundraiser of the Week - David Fisher

November 17, 2017

Our fundraiser of the week is David Fisher, who’s raised over £900 for us through collection tins at his local rugby club.David has been leaving our collection tins at The Annan Rugby…
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Finance, children's services and Unrest film at AGM

November 16, 2017

People with M.E., their carers and professionals shared their views and experiences of the illness with staff, Trustees and volunteers at our 2017 Annual General Meeting (AGM) and conference…
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Raising concerns about M.E. in Scottish Parliament

November 14, 2017

Action for M.E. has raised concerns about the lack of awareness and understanding of M.E./CFS among health professionals at the Scottish Parliament today.Clare Ogden, Head of Communications…
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Join Team Action for M.E. for the Bath Half

November 13, 2017

General entry places have now SOLD OUT for the Bath Half, but there’s still time to join Team Action for M.E. We’re looking for a record-breaking year in 2018, and we need your help…
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Fundraiser of the week - Chelsea Higgott

November 10, 2017

Our fundraiser of the week is Chelsea Higgott, who held a quiz night at her local pub, The Chadwick Arms.Chelsea has held the event in previous years to raise money for the charity…
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New webinar for healthcare professionals coming soon

November 09, 2017

A new webinar aimed at educating healthcare professionals about M.E. will be launched later this month.Meeting the needs of people with M.E./CFS – essential facts and practical tips…
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Action for M.E. attending launch of Oceans 7

November 08, 2017

Action for M.E. is delighted to support a new film, currently in production, that tells the story of Beth French, who set out to swim the seven most dangerous sea-channels in the world…
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PIP changes could benefit people with M.E./CFS

November 08, 2017

New changes have been made to Personal Independence Payment (PIP) that could make it easier for people with M.E./CFS to claim the benefit. Describing the changes, our Welfare Benefits…
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Latest research: M.E. cellular bioenergetics impaired

November 06, 2017

Research co-funded by Action for M.E., showing that cellular bioenergetics is impaired in patients with M.E., has been published in the journal PlosOne.Also co-funded by the Medical…
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Fundraiser of the week: Matthew Inge

November 03, 2017

"We cannot remember a day that she was not in pain on some level. It is difficult to imagine and people often don't see us at her worst."This is our fundraiser of the week, Matthew…
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Unrest screening plus Q&A in Bath on 14 November

November 03, 2017

As charity partner of the award-winning M.E. documentary Unrest, Action for M.E. is delighted to support a community screening in Bath later this month, where our Chief Executive, Sonya…
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Double your donation: the Big Give Christmas Challenge

November 01, 2017

The children and adults that Action for M.E. supports rely on services funded by your generous donations. We are absolutely thrilled that, for one week only, those donations will be…
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Could you be a Christmas Angel for someone with M.E.?

October 31, 2017

Action for M.E.’s Christmas Angels project – now in its seventh year – enables people with M.E. to send Christmas cards to each other via the Action for M.E. office.If you would like…
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One week left to share your experience of PIP or ESA

October 30, 2017

"It has been a distressing time for me. By the time I was at tribunal, I was given a five-year award due to the severe impact all of this has had on my health."This is the experience…
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Fundraiser of the Week - Ben Brockway

October 27, 2017

Our fundraiser of the week is Ben Brockway, who took part in the Great South Run 2017 along with team members John Spanner, Lewis Rule, Mark Hills, Liz Sinclair and Pete Sinclair.Talking…
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Teachers, your opinions are needed

October 26, 2017

We’ve had a great reaction to our consultation on the future of our support services for children and young people but there’s still one group of people we haven’t heard much from –…
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Your chance to help shape our children's services

October 25, 2017

People with M.E. who are too ill or unable to attend our AGM and conference next month will be able to join in with discussions about our children’s services from home.Action for M.E.…
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Campaigning for M.E. at Safe in School lobby day

October 23, 2017

Action for M.E. is campaigning with children who have M.E. and their parents at Westminster today to highlight the challenges they face in accessing education that meets their needs.As…
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Fundraiser of the Week: Jon Winter

October 20, 2017

This week's Fundraiser of the Week is one of our 2018 London Marathon runners, Jon Winter. We are absolutely delighted that he has already raised more then £1,000 for our vital work,…
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How can we best support children with M.E.?

October 20, 2017

How can we best design support services that reduce isolation, increase knowledge and awareness, and ensure equality of care for children with M.E. and their families?Designed and led…
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See award-winning M.E. doc Unrest at our events

October 18, 2017

Action for M.E. is thrilled to be partnering with award-winning documentary Unrest to raise awareness and understanding of M.E. and its impact. Working with the team behind the film,…
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Fundraiser of the Week - Amanda Wanless

October 13, 2017

Our fundraiser of the week is Amanda Wanless, who is running the Royal Parks Half Marathon because her sister has M.E.Amanda said: “My sister was the one who talked me into going through…
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Applying for PIP and ESA: share your story

October 13, 2017

Our Head of Communications and Policy will be speaking on BBC Radio 4’s You and Yours programme today about the challenges facing people with M.E. who apply for welfare benefits, specifically…
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Join us for M.E. event at the Royal Free Hospital

October 11, 2017

The impact of M.E., and the challenges faced by children, families and adults living with the condition, will be the focus of an awareness-raising event at London’s Royal Free Hospital…
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Should I get a flu jab if I have M.E.?

October 09, 2017

It’s that time of year where Action for M.E. has started getting numerous queries from people with M.E. about whether or not they should have the flu jab.Last year our volunteer Emily…
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Fundraiser of the week - Adele Currie

October 06, 2017

Our fundraiser of the week is Adele Currie, who took part in a Grand Canyon Trek for us.Joined by her friend Catherine Hunter, Adele trekked her way around the Grand Canyon last month…
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Your chance to take part in PIP and ESA inquiry

October 04, 2017

“During my assessment my M.E. was hardly acknowledged or really talked about. The assessor was a nurse and I felt they had little knowledge of my condition or the difficulties it presents…
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Our 2017 AGM and conference: programme confirmed

October 03, 2017

Action for M.E.'s annual AGM and conference offers a valuable opportunity to share your views and experiences with others affected by M.E., meet Action for M.E. staff, Trustees and…
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Using your experience of M.E. to support others

October 02, 2017

Do you live in Fife, Edinburgh or Lothians? Could you use your experience of M.E. to support someone else living with the condition?We are seeking volunteers to get involved in our Mentor…
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Fundraiser of the week - Sam Wilkins

September 29, 2017

Our fundraiser of the week is Sam Wilkins, who is cycling from Land's End to John O'Groats.Along with their brother Steve, Sam will cycle 969 miles in 9 days to raise awareness of M.E.…
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M.E. costs UK economy over £3 billion

September 28, 2017

M.E. cost the UK economy at least £3.3 billion in 2014/15, according to a research report published today.The figures account for healthcare costs, disability-related welfare payments,…
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Updates on NICE review of CFS/M.E. guidelines

September 27, 2017

The National Institute for Health and Care Excellence (NICE) have announced a full review of the guideline on M.E., Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy):…
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SEN magazine features report into false accusations

September 26, 2017

Action for M.E.’s report into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness has been featured in Special…
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Fundraiser of the week: Matthew Lindley

September 22, 2017

"Shouting about M.E. whilst jumping out of a plane for Action for M.E. because millions of people suffer in silence."That's how this week's brilliant fundraiser of the week, Matthew…
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SMILE Trial results published: Action for M.E. comment

September 20, 2017

Results of a trial published today show that a small cohort of young people with mild or moderate M.E. report improvement in their symptoms after undergoing the Lightning Process in…
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NICE guidelines on CFS/M.E. to be reviewed

September 20, 2017

The National Institute for Health and Care Excellence (NICE) has decided to review its clinical guideline on M.E. following consultation with M.E. charities and other stakeholders,…
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NICE must recognise M.E. is not functional

September 19, 2017

Action for M.E. has responded to a National Institute of Health and Care Excellence (NICE) guideline on Suspected neurological conditions stating that M.E. must not be considered a…
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Fundraiser of the week - Ruth Johns

September 15, 2017

Our fundraiser of the week is Ruth Johns, who has donated the proceeds from her book St Ann’s Nottingham: Inner City Voices, along with Tony Miller, founder of the St Ann’s Well Road…
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Add your voice to those calling for action on PIP

September 14, 2017

“I was too unwell to appeal, knowing that the extra stress would cause further relapse.”That’s the experience of just one person with M.E. who inputted into the Disability Benefits…
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Researchers from the UK, US and beyond at #CMRC2017

September 13, 2017

"Any physician will tell you that you learn a lot more from talking to patients than you do from reading any kind of text book."These are the words of leading US M.E. researcher Dr…
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Senior social workers to learn about impact of M.E.

September 12, 2017

The impact of M.E. will be brought to the attention of senior social workers today when Action for M.E.’s report into families facing false accusations is shared with them at a conference…
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Motion calls for review of the NICE guideline

September 11, 2017

Labour MP for East Ham Stephen Timms has tabled an Early Day Motion (EDM) asking MPs to support a review of the NICE guideline for M.E., after being contacted by constituent and M.E.…
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Fundraiser of the week - Great North Run team

September 08, 2017

Our fundraiser of the week is our Great North Run team!Danny O'Donnell, Sarah Perkin,  Matthew Theobald, Selina Jervis,  Lynne Blakey and Kelly Hooper will be all be taking part in…
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Considering the impact of Brexit on people with M.E.

September 06, 2017

Action for M.E. has helped ensure the needs of people with M.E. are taken into account for a parliamentary meeting about the impact of Brexit on disabled people.We have provided a briefing…
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​Join Action for M.E. for the Great Birmingham Run

September 05, 2017

Join Action for M.E. for the Great Birmingham Run 2017 and help raise funds and awareness for a little understood, life stealing neurological condition affecting thousands of men, women…
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Updated information for teachers and school staff

September 04, 2017

With many schools starting back today, now is the ideal time to educate yourself about how M.E. can affect young people.If you're a teacher or member of staff working in a school setting,…
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Fundraiser of the Week - Siobhan Mays

August 31, 2017

Our fundraiser of the week is Siobhan Mays, who is walking and jogging 50 miles as part of a “run at your pace” event.The distance will be covered between September 1 and September…
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Do you know how to support an employee with M.E.?

August 31, 2017

Many people with M.E. aren’t well enough to stay in employment but for those who are able to manage, it’s vital that their employer understands M.E. and the effect it has on their employee.Our…
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Research conference registration closing soon

August 31, 2017

If you're hoping to attend the 2017 UK CFS/M.E. Research Collaborative (CMRC) conference featuring Prof Jose Montoya on Wednesday 13 and Thursday 14 September, it's worth bearing in…
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​Latest research: hunting for biomarkers

August 25, 2017

Supporting you to stay informed about M.E. research, we publish regular round-ups by Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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Fundraiser of the week - Wendy Tideswell

August 25, 2017

Our fundraiser of the week is Wendy Tideswell, who is testing her head for heights by taking part in a sponsored wing walk for Action for M.E.Wing walking is exactly what the name suggests…
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All Party Parliamentary Group on M.E. update

August 22, 2017

Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time.…
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Guide to severe M.E. now available in our store

August 21, 2017

With the kind permission of Emily Collingridge's family, Action for M.E. has begun selling physical copies of  Severe M.E./CFS - a guide to living through our online store.Severe M.E./CFS…
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Fundraiser of the week - Emma Dixon

August 18, 2017

Our fundraiser of the week is Emma Dixon, who is swimming the length of Coniston Water for Action for M.E.Emma raised a fantastic £1,000 in sponsorship in just 24 hours and has raised…
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M.E. in Northern Ireland: our NVTV interview

August 17, 2017

Less than half of UK NHS boards commission a specialist service for M.E., and Northern Ireland has no provision at all, leaving thousands of desperately ill people unable to access…
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CMRC conference update: filming presentations

August 16, 2017

Experts in neurovirology and orthostatic intolerance take the lead at the fourth annual UK CFS/ME Research Collaborative (CMRC) conference next month, which will be filmed by Action…
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Severe M.E. focus on BBC Radio Suffolk tomorrow

August 14, 2017

M.E. will be the focus of Mark Murphy's programme on BBC Radio Suffolk from 7am tomorrow, with a local mum talking about her family's experience of severe M.E.Action for M.E.’s Head…
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Fundraiser of the week - Tim Reynolds

August 11, 2017

Our fundraiser of the week is Tim Reynolds, who is taking part in the Thames Path Challenge for us.The Thames Path Challenge involves walking, jogging or running 100km from Putney Bridge…
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Action for M.E. calls for improved Scot health service

August 09, 2017

Action for M.E. has called for improvements to Scottish health services in response to an inquiry into the culture of the NHS in Scotland.In our response to the Health and Sport Committee’s…
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Fundraiser of the week - Kelly Hooper

August 04, 2017

Our fundraiser of the week is Kelly Hooper, who is taking part in the Great North Run for us.Talking about her reasons for supporting us, Kelly said: “18 months ago our daughter Fifi…
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Fundraiser of the week - Clive and Gina

July 27, 2017

Our fundraisers of the week are Clive and Gina, who are taking part in the Prudential RideLondon 100 event for us this Sunday.Talking about their reasons for supporting us, Clive said:…
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New report: specialist NHS services for M.E. in the UK

July 25, 2017

A new report by Action for M.E. into specialist services has confirmed that vast numbers of people with M.E. do not have any specialist services in their local area.The report, titled…
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Help shape our work in Scotland: event in August

July 25, 2017

If you have experience of living with M.E. or are a professional with an interest in the illness living in Scotland, we'd like to invite you to attend a meeting to help shape our Scottish…
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NICE guideline on CFS/M.E. must be reviewed

July 24, 2017

Action for M.E. has told the National Institute for Health and Care Excellence (NICE) that the guideline CFS/M.E.: diagnosis and management must be reviewed in full and updated.NICE…
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Fundraiser of the week - Alistair Houghton

July 21, 2017

Our fundraiser of the week is Alistair Houghton, who is taking part in the AJ Bell London Triathlon for us.Taking in several famous London landmarks, the triathlon is considered the…
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​M.E. healthcare in Scotland: share your views

July 21, 2017

What treatment or management approaches for M.E. have you been offered by healthcare professionals? Did they listen to your views and treat you with respect?Action for M.E. is asking…
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Attend both days of CMRC conference: register now

July 18, 2017

Following requests from people with M.E., this year’s CFS/ME Research Collaborative (CMRC) conference is now open to people with M.E., carers and M.E. advocates on both days.Taking…
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Fundraiser of the week - Matthew Driver

July 14, 2017

Our fundraiser of the week is Matthew Driver, who is cycling 100 miles in the Prudential Ride London event for us on July 30 along with his girlfriend Ani.Matthew said: “M.E. is a condition…
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Action for M.E. to NICE: guideline must be reviewed

July 10, 2017

Action for M.E. will respond to a National Institute of Health and Care Excellence (NICE) consultation to say that the clinical guideline for M.E. must be reviewed in full.Having considered…
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Fundraiser of the week - Wendy Fisher

July 07, 2017

Our fundraiser of the week is Wendy Fisher, who is running the Great North Run for us.Wendy said: “I didn't get a place in the ballot, so thought that was it. Then I spotted the charity…
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Holiday advice for parents of people with M.E.

July 06, 2017

If you're the parent of a young person with M.E. (or you have M.E. yourself) and are thinking of going on holiday during half-term, it’s worth knowing that at European airports you…
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Visit Drayton Manor Park and help support our work

July 04, 2017

With the school holidays approaching we have a chance for you to treat the family and raise money for Action for M.E.We’ve partnered with Drayton Manor Park to offer tickets to all…
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Fundraiser of the week - Wil Collins

June 30, 2017

Our fundraiser of the week is Wil Collins, who is combining motorbiking and mountain trekking to raise money for us and awareness of M.E.Explaining the origins of his idea, Wil said:…
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​Research round-up: genetics, comorbidities and more

June 30, 2017

Each month Action for M.E. publishes a round-up of research-related news written by our volunteer Emily Beardall, covering a selection of papers published in peer-reviewed journals.Please…
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Families talk M.E. and child services on BBC Radio

June 29, 2017

More families that have been helped by our Children's Services Team have been speaking out about false accusations that have been made against them despite the threat of continued action…
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Families affected by M.E. speak out on File on 4

June 28, 2017

The findings of our national survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness were revealed last…
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​Action for M.E. to call for review of NICE guidelines

June 27, 2017

Action for M.E. will be calling for a review of the National Institute for Health and Care Excellence (NICE) clinical guideline on M.E.NICE has announced it will be holding a consultation…
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BBC highlights Action for M.E. survey

June 27, 2017

The results of an Action for M.E. survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness will be revealed…
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Fundraiser of the week - The BoneShakers

June 23, 2017

Our fundraiser of the week is the BoneShakers group, who have driven from Calais to Monte Carlo in an old donated car.Family members Gill, Matt, Rhiannon and Jane (who is also an Action…
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Action for M.E. comment on GETSET study in Lancet

June 23, 2017

Some people with M.E. report that using a guided self-help version of graded exercise therapy (GET) helps improve symptoms, says a study published yesterday in the Lancet.Two hundred…
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