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Action for M.E. CEO attends IACFS conference

October 27, 2016

Joining Stanford University’s Dr Lily Chu and DePaul University’s Prof Leonard Jason, Action for M.E. Chief Executive Sonya Chowdhury will take part in a panel discussion on patient engagement at the International Association for CFS/M.E. (IACFS)’s 12th annual conference this week.

Nothing about us without us: how community-engaged research can accelerate progress in the field of M.E./CFS is part of a packed programme of presentations, workshops, panels and screenings, focusing on emerging science and clinical care, over four days in Fort Lauderdale, Florida.

Funded entirely by a private donor, Sonya’s visit to the conference will enable her to identity opportunities for collaboration and engagement.while networking with professionals, patients and advocates, expected to attend from more than 25 countries. She will report on the conference in a blog post that will be posted online soon.

Today’s opening keynote presentation on M.E. developments at the National Institutes of Healthwill be given by Dr Vicky Whittemore. Dr Whittemore will then join Sonya on Sunday’s panel along with M.E. patient Terri Wilder and Prof Jin-Mann Lin, senior statistician and epidemiologist at the US Centers for Disease Control and Prevention.

For a conference preview that highlights areas of particular interest, please see Cort Johnson’s blog post, IACFS conference brings the goods