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Action for M.E. calls for improved Scot health service

August 09, 2017

Action for M.E. has called for improvements to Scottish health services in response to an inquiry into the culture of the NHS in Scotland.

In our response to the Health and Sport Committee’s inquiry, Action for M.E. said that health services for people with M.E. need to:

  • Take into account the views and experiences of people with M.E.
  • Be consistently monitored, taking into account both the short-term and long-term outcomes for people who access the service
  • Deliver appropriate and timely health interventions, with the full and informed consent of the patient, that are in line with the Scottish Good Practice Statement on ME-CFS

To inform their findings, the Health and Sport Committee asked for information on the quality and effectiveness of services, as well as whether services treated people with dignity and respect.

Action for M.E.’s response was informed by:

  • Our recent survey of people with M.E. in Scotland, which asked about healthcare and services
  • Responses from Scottish Health Boards that informed our report Spotlight on specialist services
  • The experiences of people affected by M.E. who engage with us, whether by contacting our services directly or interacting with us online.

Thank you to all of those who took part in our survey on NHS healthcare in Scotland. By sharing your experiences, Action for M.E. is able to amplify the voices of patients and take action against the ignorance and neglect facing people with M.E.