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APPG on M.E. to launch new report, Rethinking M.E.

May 13, 2022

The All-Party Parliamentary Group (APPG) on M.E. have announced a meeting on Wednesday 25 May to launch their first report, Rethinking M.E.

Carol Monaghan MP, Chair of the APPG, says:

"At this event, we will reflect on the progress being made to improve recognition and understanding of M.E. amongst the medical profession and other relevant professions. We will hear directly from people with M.E on their desire for better care and discuss the steps needed to positively transform the way people with M.E. are treated in the UK.”

All Westminster MPs (and some members of the House of Lords) have been invited by Carol Monaghan MP to come to this meeting, and people with M.E. are welcome to encourage their MP to attend.

You could:

The launch of the APPG report follows the pioneering statement made by Sajid Javid, setting out plans for a new cross-Government delivery plan on M.E. for England, aligning with other devolved nations of the UK.

Template letter

Dear Name of MP

As one of your constituents who has ME/cares for a person with ME/is a parent of a child with ME, I hope you will be able to attend the launch of an important report from the APPG on ME.

I understand you have already had an invitation from APPG Chair, Carol Monaghan MP, to attend this event 3:00pm - 4:30pm Wednesday 25th May 2022.

This report by the APPG is based on evidence from researchers, clinicians, charities, people living with and caring for those with ME/CFS, gathered at a series of hearings.

The report, entitled Rethinking ME, covers key issues of concern to people with ME, clinicians and researchers and makes a number of recommendations for action.

This follows on from the Secretary of State for Health and Social Care, Sajid Javid, making a written statement last week, which highlighted the work of the APPG:

“I am announcing the Government’s intention to develop a cross-Government delivery plan on ME/CFS for England, aligning with other devolved nations as appropriate. In particular, we are engaging with the Scottish Government to explore areas of potential shared interest and learning, especially in terms of research into ME/CFS. This will build on the recommendations of the Priority Setting Partnership, the recently updated guideline for ME/CFS from the National Institute for Health and Care Excellence, and the comprehensive work of the All-Party Parliamentary Group on Myalgic Encephalomyelitis to date. At the heart of the delivery plan will be two core principles. Firstly, that we do not know enough about ME/CFS, which must change if we are to improve experiences and outcomes. Secondly, we must trust and listen to those with lived experience of ME/CFS.”

Kind regards

Your name