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M.E. and social care inquiry: can your MP attend?

December 16, 2016

Could you tell your MP about an upcoming meeting of the All-Party Parliamentary Group (APPG) on M.E. and encourage them to attend?

Action for M.E. is contacting parliamentarians to do this too – but we know direct contact from constituents is the most effective way of encouraging MPs to get involved. We have produced a template letter below to make this as easy as possible – or how about tweeting them a link to this story? See below for some templates and ideas.

The APPG on M.E. has been conducting an inquiry into social care for people with M.E. and, at its next meeting in January, will discuss evidence gathered in order to decide on inquiry recommendations. This evidence is based on a number of sources, including:

  • Action for M.E.’s Close to collapse survey of more than 850 people with M.E., which highlights the shocking gap between need and service provision
  • a roundtable discussion event attended by third sector, social care and health care representatives
  • case studies and experiences shared by APPG charity partners including The 25% M.E. Group, highlighting the lack of appropriate care for people with M.E.

For more information about the meeting, please contact our Policy Officer Katie McMahon by email or on 0117 937 6623.


Contacting your MP on Twitter

We’ve drafted some tweets to get you started:

  • Lack of appropriate social care = key issue for me and others with #MECFS. Can you attend APPG meeting? Contact Secretariat @actionforme
  • Pls add your voice to APPG inquiry on appropriate social care for me and other constituents with #MECFS. Contact Secretariat @actionforme


Sending your MP a template letter

You can personalise this letter/email to say a bit about your individual circumstances, and find your MPs contact details on the Parliament website. The house rises for Christmas on Tuesday 20 December and MPs return on Monday 9 January 2017

Dear [MP’s name]

I am one of the 250,000 people in the UK living with the chronic, neurological condition myalgic encephalomyelitis (M.E.). M.E. is a widely misunderstood illness, and many of those affected experience considerable barriers in accessing healthcare, welfare benefits and social care.

[You can personalise the letter by sharing your personal experience of M.E. here. We recommend keeping it to a single paragraph, as experience tells us that letters kept to one page in length are most effective.]

At a meeting of the All-Party Parliamentary Group (APPG) on M.E. in January, parliamentarians will review evidence presented as part of the APPG’s social care inquiry into the shocking lack of appropriate service provision for this vulnerable patient group.

Please would you attend this meeting to help shape inquiry recommendations? It's being held on Tuesday 17 January, 2pm to 3pm, in Room T at Portcullis House and any time you can spare would be much appreciated.

The secretariat for the APPG on M.E. can provide more details and answer any questions you might have, including about joining the APPG, which exists to improve the lives of people with this condition. Please contact the secretariat on policy@actionforme.org.uk or call on 0117 937 6623.

Yours sincerely

[Your name]