December 21, 2016
Selected presentations from this year's UK CFS/M.E. Research Collaborative (CMRC) conference are now available to read in a draft overview - a full report is expected soon. The CMRC aims to promote the highest quality research into M.E. and Action for M.E. has been an Executive Board member since its inception 2013.
A paper was published last week in the peer-reviewed journal Fatigue: Biomedicine, Health and Behavior analysing the raw PACE trial data that was released following a well-publicised FOI request earlier this year. It concludes that "the claim that patients can recover as a result of CBT and GET is not justified by the data."
The UK M.E./CFS Biobank, which Action for M.E. co-funded, has announced this week that it has reached its participant recruitment goals, and has banked close to 30,000 blood samples known as aliquots. The samples represent people with mild, moderate and severe M.E., multiple sclerosis and non-M.E. chronic fatigue as well as healthy participants. You can read more about the announcement in the Cure ME newsletter.
Over in the US, the Solve ME/CFS Initiative has announced the five recipients of its new Ramsay Award Program for scientists conducting M.E. research. The studies they are working on will explore "diverse and promising areas," says the charity's Vice President for Research and Scientific Programs, Dr Zaher Nahle, including autoimmunity, metabolic proﬁling, immune dysfunction, diagnostic testing and advanced brain imaging.
22 DEC UPDATE New research published yesterday by the Norwegian team also trialling rituximab to treat M.E. as an autoimmune condition, suggests the way cells generate energy is at fault in people with the illness. This study builds upon research earlier this year by Dr. Robert K Naviaux, finding potentially twenty abnormal metabolic processes in people with M.E. Read more on our volunteer pharmacist Emily Beardall's blog post, Not just tired.