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Fundraiser of the week - Simon Dooley

January 06, 2017

Our fundraiser of the week is Simon Dooley, who held a charity night at The Clarendon Showtel and Fosses Theatre in Blackpool this week.

The charity night, which included performances from local artists and videos about the illness, raised an amazing £954.36.

Simon, who has experience of M.E. himself, said: “We had many local talented performers on the night, including another M.E. sufferer (Dave Surman) and my Partner James Reay. All our staff also donated their tips on the night as well as guests and friends buying raffle tickets and Family members donating a Laptop Bundle on a separate raffle.

“I work in media and was able to create some videos about the illness that were played throughout the night to a deathly quiet audience (it was eerie and touching). People afterwards came over to ask for copies of the videos as they had no idea what the illness was or what it meant for those who have it. Needless to say it was a massive success and a great way of raising awareness.”

Talking about his reasons for supporting us, Simon explained: “I was diagnosed with M.E. in September 2016, just as the clinical commissioning group decided to remove all NHS services for M.E/CFS. I had already been on the Action for M.E. website but it has now become my main source of information and support when I feel I need it. I am also in the process of applying for PIP and am now at the appeals stage, as the PIP centre felt my medical evidence didn’t count. Your site has also helped me cope with this degrading and very tiring process.”